Well done @mariovitali. Great news. Thank you for your work. Just to say in case it’s pertinent to what you are doing that I too have begun to...
Both of these shared to a local group.
Is there any point in trying to involve Carol Monaghan in this, or at least in more details of the argument that ME has not been allocated...
Thank you @wigglethemouse . Certainly to be read tomorrow.
@Barry I am seeing a geneticist on Fri and the referring Prof suggested my illnesses including ME, hypermobility +others may be part of a...
@Dechi - yes, my doctor wanted me at 4.5 when I saw him in early May because he said that’s where the best results lie ( close to 5 so our doctors...
Thanks @Dancer. I hope i’ll be able to get a prescription for either the sublingual drops or cream, both of which are available at the pharmacy in...
Have posted my experiences on the other LDN thread. Basically I managed 6 weeks at 2.0 titrated up from 0.5. When I moved up to 2.5, I had severe...
Reporting back on LDN. Restarted this week after a 2 week break to let my stomach settle down. During that 2 weeks had lab results back which...
Thank you @Jonathan Edwards.
https://forums.phoenixrising.me/threads/post-infectious-cervical-instability-variants-of-the-grisel-syndrome-a-link-to-post-infectious-cci.76494/...
https://forums.phoenixrising.me/threads/panel-and-q-a-after-unrest-at-hampshire-college-feb-2019.76446/ There is a thread on Phoenix Rising where...
@Jonathan Edwards I think I fit into both your groups 2 and 3 of people who may have EDS but with symptoms of ME. I have mitral valve prolapse...
Just thinking and there may be an obvious answer that escapes me. Presumably the 3 surgeons who are reported to be most competent at this...
I remember the week in March when I was in Venice celebrating our 50th anniversary, spending all the time I was in bed reading the Rod Liddle...
Thanks for the good wishes @Alvin. Your description of feeling like being on a rollercoaster or affected by centrifugal force was just how I felt....
Question from @strategist about travelling by car.#125 Thanks @Jeff_w and @JenB and @Mattie for sharing so much I posted yesterday about the...
Thanks @NelliePledge If I had been pushing for investigations like the upright MRI with the right sort of flexion images, I don’t think he would...
Or saline?
I brought this up with my GP a few months ago. I did this because of 2 things 1) I developed a new symptom last summer- a severe worsening of...
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