Prescient comment by @CRG early in June "Great work on getting Ed Davey to write to Kamal - it's important that both Kamal and Javid are the focus...
Thanks for pointing out the above @Sly Saint. It is clearly at least version 2 from the original ( which was posted before March 2019) because of...
I have not had a fourth, and intend to refuse further vaccines until there is more understanding of the damage it can cause.
Very interesting @Andy but I am interested to know who has had a fellowship grant relating to ME. The research areas that Lord Kamall describes...
Thanks @Andy. The letter from Lord Kamall was to Ed Davey M.P. who gave permission for it to be posted here. Might it be worthwhile to try to...
We recently had a letter from Lord Kamall via Ed Davey our MP. See...
Thank you very much. I'm not clear as to structures, participants etc and will be glad to be brought up to date. Exciting times.
https://www.science.org/content/article/what-causes-long-covid-three-leading-theories Clues to long covid by Jennifer Couzin - Frankel Tweeted...
I would welcome a new thread on the ME/CFS Delivery Plan. ( is this a formal allocated name? I don't remember it but that is likely to be my...
Loved it.
I feel uncomfortable not knowing who the patient members are and what is their remit. Is their remit to represent themselves as patients or to...
I have factor V Leiden. This is often described as sticky blood or blood which is more liable to clot in certain circumstances such as immobility...
Thank you @CRG . I am lucky that Ed Davey is a responsive MP. He has spent time learning the issues in ME and decided himself to write to Lord...
I have posted this here because it relates to Sajid Javid's announcement but @CRG has posted some interesting details on...
How can Javid's commitment to more funding for ME be met when the overall figure for research is decreasing if inflation is taken into account?...
From the Daily Telegraph AstraZeneca vaccine may increase risk of serious neurological condition Scientists believe the jab’s Trojan horse...
On my facebook page has arrived a link to a UK group for those with vaccine injuries. They already seem to be in touch with a firm of solicitors...
@Sarah94 - I think you are wanting links to NIH study.
@Trish- I think this is the article we have been discussing in the APPG thread....
I like to get involved in advocacy but immediately the practical problem comes up if working with others , of how to get involved when my energy...
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