@Sasha I can verify that waist high compression tights are wearable but with difficulty. I have damaged both thumbs, confirmed by X-ray, in...
Thanks @Sasha. Plenty to read there. ETA: Sorry to hear none of treatments helped.
My experience of OI:- Before I used a wheelchair, I used to carry a light folding stool with me so that if ever I had to stop walking, I sat on...
I have started and been increasing slowly my LDN dose- too soon to judge efficacy. But in the last week, sleep has worsened. Anyone else noticed...
I advertised it in a local group, also making the point that small donations were welcome and showed the involvement of many pwme.
I donated a couple of days ago but forgot to say here which is a shame because I missed the chance to tell David how much his work is appreciated...
Just in case anyone missed David Systrom’s presentation ( he is very impressive), there is already a thread here where Llewellyn King talks to...
I was prescribed LDN last Dec but because of ongoing chest infection and getting it made up, I didn’t begin to take it until about 6/7 weeks ago....
[MEDIA] Utube of Carol’s question. Added advantage that the House is very full so question will have had wide exposure. ETA: layout
I was in touch with my MP last week during all those awful features. He committed to talking to Carol. ETA: am crashed and may disappear.
A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the...
I am awaiting a genetics referral, made by an NHS Consultant lymphologist who postulated that my health conditions of ME, lymphadema,...
Absolutely agree. Great letter and great statement. Thank you #MEAction.
Thanks @Andy for continuing to plug on MEA’s fb page with so little response. There are very reasoned comments there including from Merryn...
I feel exactly the same way @Andy. I went onto the MEA fb page yesterday evening as I’m a member, to leave a comment about their lack of...
Thanks @JaimeS. I’m off too, to be continued. Hope you feel revived!! soon.
I really can’t agree with this @Esther12. It is not reasonable to generalise to a whole population on the basis of one tweet. I think we should...
Thanks @Trish and @Stewart Posted below is my answer to George Monbiot. Posted in Mr B’s name which attached itself automatically because he is...
Mine has not been posted either. I went back to capture it to post here. There still seems to be some activity under George Monbiot’s comment....
@Trish and all I have just responded- had not seen yours. It’s gone in the name of Mr B who has the account. My name is at the bottom. Quick...
Separate names with a comma.
