1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 21st April 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 25 of 25
  1. Binkie4
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Why was the list of selected members released in dribs and drabs? How does this benefit them? Edit: to make sense
    Post by: Binkie4, Jan 20, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  2. Binkie4
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    It has taken me a while to write this so apologies. @Michiel Tack Mr Binkie has received a further answer from Nice re our concerns about the...
    Post by: Binkie4, Jan 20, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  3. Binkie4
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    I have no idea how much notice is usual. Anyone know?
    Post by: Binkie4, Jan 17, 2019 in forum: General ME/CFS news
  4. Binkie4
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    I wrote to my MP this afternoon and he has already replied. He has a “major diary clash”. His office is seeing if anything can be done..... He...
    Post by: Binkie4, Jan 17, 2019 in forum: General ME/CFS news
  5. Binkie4
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Absolutely agree. I hope interested Members can find time to attend and are already in communication with Carol. Also- they will need to be...
    Post by: Binkie4, Jan 17, 2019 in forum: General ME/CFS news
  6. Binkie4
    Post

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    My favourite sentence in Caroline’s favourite comment on her blog...
    Post by: Binkie4, Jan 8, 2019 in forum: 2021 Cochrane Exercise Therapy Review
  7. Binkie4
    Post

    Numbing on one side (face/body)

    Hope you sleep well @andypants and that tomorrow is a better day.
    Post by: Binkie4, Jan 7, 2019 in forum: Neurological/cognitive/vision
  8. Binkie4
    Post

    Ampligen for ME/CFS

    Do you know how many patients the second confirmatory phase 3 will encompass @sjJohnny? Thanks.
    Post by: Binkie4, Jan 2, 2019 in forum: ME/CFS research news
  9. Binkie4
    Post

    Feeling stressed? Join a choir, says top psychiatrist. (Dec 31 2018) Davis, Classic fM

    I find singing enjoyable and uplifting but not always possible with ME. Orthostatic intolerance means being unable to stand for rehearsals and...
    Post by: Binkie4, Jan 2, 2019 in forum: Other psychosomatic news and research
  10. Binkie4
    Post

    Ampligen for ME/CFS

    Does one vial equate to one treatment? And each patient needs 2-3 per week? If i’ve made the right assumptions, 325 vials won’t treat many...
    Post by: Binkie4, Jan 2, 2019 in forum: ME/CFS research news
  11. Binkie4
    Post

    Signs of Hypoxia - anyone had this?

    I am unsure what to answer. I have never had bluish lips or nail beds but my SATs are lower than ideal. I feel much better on the couple of...
    Post by: Binkie4, Dec 31, 2018 in forum: General and other signs and symptoms
  12. Binkie4
    Post

    Public Research into childhood leukaemia- double hit theory of prebirth (but not inherited) problem and later inflammatory illness.

    Thanks @Fungi. I was interested in this double hit theory as it related to ME too. Unfortunately brain is more crashed than usual but I think...
    Post by: Binkie4, Dec 31, 2018 in forum: Other health news and research
  13. Binkie4
    Thread

    Public Research into childhood leukaemia- double hit theory of prebirth (but not inherited) problem and later inflammatory illness.

    https://www.theguardian.com/science/2018/dec/30/children-leukaemia-mel-greaves-microbes-protection-against-disease Posted this because of the...
    Thread by: Binkie4, Dec 30, 2018, 3 replies, in forum: Other health news and research
  14. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Thanks @JohnTheJack. Do you, or anyone else, have a reference? It would be interesting to know his view now, expressed clearly.
    Post by: Binkie4, Dec 20, 2018 in forum: ME/CFS research
  15. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Thanks @Lucibee, @JohnTheJack, @Michiel Tack Just wondering whether anyone has approached Pariente to ask what his view of the causes of ME is...
    Post by: Binkie4, Dec 20, 2018 in forum: ME/CFS research
  16. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Is @Keithgeraghty on here? Pariante made a statement in 2012 that ME was caused by excessive rest in predisposed individuals. I think I have...
    Post by: Binkie4, Dec 20, 2018 in forum: ME/CFS research
  17. Binkie4
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Can I just clarify? Bath made the statement about Dr Jo Daniels yesterday, but was this appointment announced earlier by Nice? How many appointees...
    Post by: Binkie4, Dec 19, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  18. Binkie4
    Post

    Suddenly feel completely well

    Really glad to read of this interesting improvement @Wonko, but not the depression. Will look for updates on how things develop. Hope you get to...
    Post by: Binkie4, Dec 18, 2018 in forum: Immunological
  19. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Me too.
    Post by: Binkie4, Dec 17, 2018 in forum: ME/CFS research
Find older messages
Showing results 481 to 499 of 499
Search Again
Page 25 of 25