Maybe this is a bit off topic, but I think this device (if it gets into commercial availability) might be useful....
@Jonathan Edwards, thanks. that is the kind of response I was hoping to enlicit. I do wish more people would watch the videos and comment. In...
I understand and appreciate your humor, and I initially had the same reaction when I watched the video, but in this case I think these reactions...
pretty interesting. here is more info on the company. It seems they have just only recently received $5 million in funding. It appears that their...
here are a couple of other links. The first is the announcement of a webinar by Solve ME/CFS on this device....
There are now 3 videos up at this site, which are a presentation by Dr. Prusty just split into 3 parts. I found watching the videos to be much...
Jared Younger's group. The journal is "PAIN". The text is behind a paywall. Evidence of neuroinflammation in fibromyalgia syndrome: a...
here is the text of an email from Simarron about the bh4 research:...
Abstract 50% of POTS patients are hypocapnic during orthostasis related to initial orthostatic hypotension (iOH). We determined whether iOH...
For those with access to ResearchGate, the pdf of the paper is posted there....
@Hutan, do you think it is possible that the UK DecodeME project might eventually lead to the pursuit of avenues like this? I am not suggesting we...
I was a patient subject in that study. I repeatedly reached out to OMF asking when that study would be published. Eventually after a few years...
Here is a screenshot from the talk Dr. Systrom gave in this video (unpublished data). He says that in the patients with “pre-load failure”, 87%...
I am about 1/2 way through watching watching this video by Dr Systrom and I find it quite a quite good summary of his groups activities up to the...
ME/CFS Pathophysiology Investigated by Invasive Cardiopulmonary Exercise Testing and Autonomic Function Testing. J. Squires 2, K. Wichmann Madsen...
here is a quote from near the end of the the paper assesing the use of pooled IgG in the previous paper:
here is an follow on study. Fibromyalgia patients with elevated levels of anti–satellite glia cell immunoglobulin G antibodies present with more...
@Hutan, Good to hear! Peter Jones is such a knowledgeable and enthusiastic communicator. I think I will take @Daisybell's recommendation...
There also are some FSHD facebook groups that can be useful, if you dare to tread into that realm. I dipped my toe into them and that is where I...
I recently had a consult with my neurologist, and he ordered a GDF-15 test, so I looked it up and found this recent reference....
Separate names with a comma.
