At the symposium today speaker Ron Tompkins announced a new website, The Harvard ME/CFS Collaboration: http://endmecfs.mgh.harvard.edu/ The...
Hi @Grigor :emoji_wave: Thanks for the translated quote - just retweeted it! :emoji_relaxed:
I forgot to mention one thing. From the last slide of the presentation: * Dr. Roberds will participate in the next NIH ME/CFS Advocacy call on...
Some screen shots from the video (not the whole thing). [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH] I think...
I have a few comments after watching the video. The ME/CFS presentation starts at about minute 56. The talk ends at about 1:24, followed by a...
The link to the recorded video is the same as the live videocast link that was listed in a post made by @Tom Kindlon above. But I thought I'd...
Yes, sorry for any confusion! I thought you already knew where to find the full instructions or I would have pointed out where they were. I know...
For what it's worth, I got the email with the addresses a day or two after the postcards arrived.
Is that the same Pendegrast? It shows T as the initial. I searched for Robert Pendegrast and found these links which match the location cited...
Here's a short good news / bad news update. The good news is that there was a huge response for this project! ME Action got requests for more...
This is kind of rambling, so I don't know how helpful it is, but thought I'd add my two cents. Maybe it partly depends on how sick the patient...
I put my first batch of five postcards in the mail today! https://twitter.com/ahimsa_pdx/status/1164568277147742210 [MEDIA]
FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.
I see a couple of comments in the chat window but, sadly, "je ne parle pas francais" ;)
I saw this tweet last night that said the livestream starts a half hour early. https://twitter.com/wigglethemouse/status/1164384541311524864 [MEDIA]
Thank you. That's a risk my cardiologist has not mentioned (or maybe I've just forgotten?). I will ask him next time. I was so excited to see an...
My cardiologist has been telling me for years that I should get ablation done. I'm hesitant because my SVT is annoying but not disabling. I'm...
Thanks for your reply and the link to that research! :) I will start by saying I don't fully understand all the terms for different heart issues....
Just a note for anyone else who is doing this project. The previous instructions for what to write on postcards had an error in the URL. This has...
Thanks @hellytheelephant for your blog post on books! :)
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