For those who are curious, the line on the postcard that says "Untitled: Emily Lawton" refers to the design on the other side of the card....
So true! I had to practice several times on slips of paper to get my handwriting that small. But I finally managed to fit it all in! Here's a...
I agree! I would hope that this thread provides inspiration (even small donations help), and hope (many small donations can add up and may lead...
I got the doctors' addresses via email. I plan to write the first card today. :emoji_writing_hand: If all goes well I may even take a photo and...
I donate to a few different ME research and advocacy groups. Why? I guess the reason I give is selfish. I want to find a biomarker and effective...
Thank you @NeilH for posting more of your thoughts. And my condolences on the death of your sister. I'm so sorry that you can't go to her funeral....
I just got my first set of postcards in the mail. Yay! I'm going to try to write one a day, maybe one every other day. I expected to get a list...
Exactly. There have been times when I skip the shower so I can use that energy to cook something. It's a balancing act. As others have said, he...
Thanks for the update, Mike! :emoji_runner: You are amazing! :emoji_trophy:
A new project from ME Action: #MEAction is excited to announce the launch of our Postcards to Doctors medical education campaign. Send...
I think all medical professionals need some basic education about ME/cfs and PEM. Physios may need this training more urgently since they may be...
I'm only moderate and this can be true for me. Which is why I rarely to go to the doctor (once a year to cardiologist to get refills of my...
Welcome @PhysiosforME :) Can anyone tell me whether a physio (physiotherapist) is the same thing as a physical therapist? Or is there some sort...
PS - I thought I'd add this note about fundraising for ME Action
We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic...
Thanks for all the links to those tweets, @Sly Saint ! :)
That's good news - thank you :heart:
Perhaps some sort of testing for Orthostatic Intolerance (eg, POTs or NMH) would be a good addition? The Bateman Horne center is doing research...
Agreed. I think subjective measures of pain, nausea, dizziness and so on are just as important as objective measures of activity or tasks...
I may be misunderstanding something. Does the "we" in this sentence mean ME/CFS patients? Can you help me understand the need for elevated heart...
Separate names with a comma.
