:balloons: Bravo, and thank you, @Mike Harley ! :trophy@ Every time I see a photo of you holding up that banner it puts a big smile on my face! :D
The MEAction website has info on how to set up or participate in #MillionsMissing protests on May 12, 2018....
This looks great and I appreciate all the work being put into planning ME/CFS Advocacy Day! I won't be able to travel to Washington, DC. But I'm...
For those on twitter: https://twitter.com/RogueMamma/status/977782262379962368 [MEDIA]
This CNN article profiles several people who were unable to march (for many different reasons) in Saturday's "March for Our Lives" protest but who...
What I always find missing from these kind of pieces about learning how to live with ME is that they so often completely omit financial issues. I...
Whoa! Considering that some studies have shown low blood volume, how did you have any blood left in you after all that? ;) But seriously, thanks...
There's also a new app that I read about that rates accessibility:...
@Arnie Pye I used google to search for EEG photos and quickly found this page with a similar photo:...
I got the impression that she was planning to make films on other topics. But I could be wrong.
I think what you're describing here is a symptom I've had since the very beginning (illness onset in 1990). I get these small muscle twitches all...
For folks on twitter, here's a link to a tweet by @Tom Kindlon that you can re-tweet to spread the word: [MEDIA]
I'm not sure how much sleep I need ;) but I get between 7-8 hours with lots of awakenings (see...
This is pretty close to my own onset pattern. Really bad flu-like illness in late December 1989. Then I thought I was recovered and went back to...
Thanks for posting that link, Andy. This is one of those fairly short articles that I find helpful to share with friends/family who know very...
For @Little Bluestem (and anyone else who couldn't view the poem using the twitter link) here's a youtube version that might work. [MEDIA] Video...
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