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  1. ahimsa
    Post

    US News : Western Wisconsin Residents struggle with chronic illness Nov 2019

    I've been pretty foggy lately but I can't see why there would be copyright issues with posting a link to the article. It just eliminates a step in...
    Post by: ahimsa, Nov 22, 2019 in forum: General ME/CFS news
  2. ahimsa
    Thread

    #MEAction: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

    An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
    Thread by: ahimsa, Nov 18, 2019, 28 replies, in forum: Advocacy Action Alerts
  3. ahimsa
    Post

    Should ME organisations do more direct action to get more funding for ME research?

    If I'm reading your posts correctly (not really able to watch your videos) you're interested in more protesting in the streets. So my suggestion...
    Post by: ahimsa, Nov 2, 2019 in forum: General Advocacy Discussions
  4. ahimsa
    Post

    Solve ME/CFS Initiative: ME/CFS Advocacy Week and DC Lobby Day 2020

    Thanks for the new thread! I look forward to reading more about it as the time comes nearer. I once met with an aide to my own local...
    Post by: ahimsa, Oct 31, 2019 in forum: Advocacy Projects and Campaigns
  5. ahimsa
    Post

    ME Action petition to Walter Koroshetz

    I'm trying to do my small part on twitter :) Pinned tweet: https://twitter.com/ahimsa_pdx/status/1188175417473032192 [MEDIA] Short thread...
    Post by: ahimsa, Oct 30, 2019 in forum: Petitions
  6. ahimsa
    Post

    ME Action petition to Walter Koroshetz

    More than 3000 signatures so far. :)
    Post by: ahimsa, Oct 26, 2019 in forum: Petitions
  7. ahimsa
    Post

    Tilt table test

    A basic standing test may be okay for diagnosing POTS. But what about other forms of orthostatic intolerance? From what I've read the tilt table...
    Post by: ahimsa, Oct 26, 2019 in forum: Laboratory and genetic testing, medical imaging
  8. ahimsa
    Post

    Article: Brain studies show chronic fatigue syndrome and Gulf War illness are distinct conditions

    Dr. Klimas has also done research using tests that were able to distinguish patients with ME/CFS from patients with Gulf War Illness and also from...
    Post by: ahimsa, Oct 24, 2019 in forum: ME/CFS research news
  9. ahimsa
    Post

    A proposal for ME Action: a commitment to evidence-based medicine

    Thank you @Michiel Tack :heart:
    Post by: ahimsa, Oct 23, 2019 in forum: General Advocacy Discussions
  10. ahimsa
    Post

    OMF website resource list - should Science for ME forum be on this list?

    Thanks for the info, @Lynn :) I did contact OMF. I sent email to info@omf.ngo. No response yet. I will follow-up soon. I think Science For ME...
    Post by: ahimsa, Oct 14, 2019 in forum: General Advocacy Discussions
  11. ahimsa
    Post

    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center

    Yeah, it's clearly something they set up for the video. It's almost identical to what was used in the last video that they posted. [ATTACH] [ATTACH]
    Post by: ahimsa, Oct 14, 2019 in forum: News from organisations
  12. ahimsa
    Post

    Open Medicine Foundation (OMF) fundraising

    I promised to post photos of the bracelet - here they are for anyone who is interested (click to enlarge photos). [ATTACH] [ATTACH] I'm not...
    Post by: ahimsa, Oct 12, 2019 in forum: Fundraising
  13. ahimsa
    Thread

    OMF website resource list - should Science for ME forum be on this list?

    While searching for a copy of an OMF fact sheet I stumbled across this web page: https://www.omf.ngo/resource-center-2/ It lists a bunch of...
    Thread by: ahimsa, Oct 12, 2019, 5 replies, in forum: General Advocacy Discussions
  14. ahimsa
    Post

    Solve ME/CFS Initiative Community Advisory Council

    I the read announcement and the nomination form (PDF) which covers a bit more about the nomination process. But I haven't found out how large...
    Post by: ahimsa, Oct 11, 2019 in forum: Advocacy Projects and Campaigns
  15. ahimsa
    Post

    Postcards to Doctors returns! (project from ME Action)

    Sorry, I don't have any references to actual research. My post was just meant to be quick summary of the announcement by the ME Action website. I...
    Post by: ahimsa, Oct 10, 2019 in forum: Advocacy Projects and Campaigns
  16. ahimsa
    Thread

    Postcards to Doctors returns! (project from ME Action)

    After a brief pause the "Postcards to Doctors" project has been relaunched as of Oct. 1. The aim of this project is to have patients (as well as...
    Thread by: ahimsa, Oct 10, 2019, 3 replies, in forum: Advocacy Projects and Campaigns
  17. ahimsa
    Post

    Resources to help with fundraising for research & advocacy groups

    Here's a page from the Solve ME/CFS website (they use crowdrise): https://solvecfs.org/crowdrise-fundraising-for-solve-m-e/
    Post by: ahimsa, Oct 10, 2019 in forum: Fundraising
  18. ahimsa
    Post

    Resources to help with fundraising for research & advocacy groups

    Here's a page from the ME Action website: https://www.meaction.net/start-an-meaction-fundraiser/
    Post by: ahimsa, Oct 9, 2019 in forum: Fundraising
  19. ahimsa
    Post

    Resources to help with fundraising for research & advocacy groups

    I found this page on the OMF website: https://www.omf.ngo/reach-for-the-cure-join-team-omf/
    Post by: ahimsa, Oct 9, 2019 in forum: Fundraising
  20. ahimsa
    Thread

    Resources to help with fundraising for research & advocacy groups

    After attending a very successful fundraiser over the weekend (I just attended it, did not organize it!) I thought it would be good to have a...
    Thread by: ahimsa, Oct 9, 2019, 3 replies, in forum: Fundraising
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