@andypants - I really appreciate the thanks! But I didn't do a single thing to raise that money. Any money raised was completely due to all the...
A very quick update. The fundraiser was a big success. The total raised for OMF was $4,500! :jawdrop::D And although I've had to rest/recover...
News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
A short update: So far there have been 34 pre-registrations. At $20 per person that's $680 raised so far. And the weather is looking good for...
You should definitely feel proud of that work! :trophy@
Thanks, @Andy! I also thought I had seen a link to this NIH call (audio only) & transcript so I searched. Someone posted a link on the CDC...
For folks who more information on the background of the PCORI group (I had never heard of them but maybe I'm in the minority?) I found this...
This is a bit of a digression, but you know how sometimes your mind realizes something a day or two later? It occurs to me that maybe the phrase...
Full disclosure: Isabela contacted me via email after seeing a post about my MillionsMissing event for ME Action back in May. She has asked me to...
What: 5K Run/Walk to benefit OMF (Open Medicine Foundation) When: Sunday, Oct. 6, 2019 Where: St. Paul Elementary School in St. Paul, Oregon, USA...
Nope I don't get any itching. Just the shooting pains. Nothing visible, just pain that feels bone deep. It's not surface pain (no skin pain, no...
Thank you @wigglethemouse - my brain was simply unable to absorb the information!
To save folks the trouble of clicking the links the concert location is the Mystic Theatre in Petaluma, California.
@wigglethemouse - I noticed that the date of the comment you posted is 2014. Is that a typo? Or was that a comment about one of the previous...
So sorry to hear this, @Squeezy and @lansbergen :( I also get shooting pains all over. Location is unpredictable - could be a finger or toe or...
I sent email to the author & cc:ed the producer (if you click on the byline you can find their email addresses) asking for a headline change....
Bumping this up since the call is next week. https://www.cdc.gov/me-cfs/programs/meetings.html PS. No, I'm not super organized, I just happened...
I know QEEG testing has been around for a while. But I don't know how well accepted it is by doctors. Is QEEG testing useful in a clinical...
Article about this study by Science Daily - https://www.sciencedaily.com/releases/2019/09/190909081756.htm Edited to add a quote from the article
Thanks for posting. I'm hoping this discovery (and future studies) will eventually be helpful for the subset of ME/cfs patients who have POTS, NMH...
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