This is more a comment about Cort than the plausibility of apheresis specifically, but I wonder how much money has been cumulatively wasted on...
I see this tweet as making these problematic claims: You don’t know what’s best for yourself. Baseline-raising ME/CFS treatment exists for...
I second EndME’s recommendation for a PCR test and Paxlovid and also recommend this website:...
The view I’ve come to over the years regarding ME research and treatment anecdotes, not through any special Truth Knowing process but just me...
I’m sorry to hear about your worsening health. I bought an iPad to replace my laptop when my illness became severe enough where using one was...
I believe Lyme misdiagnosis and mistreatment is an under-appreciated, urgent problem for the global ME/CFS community. My impression, informed in...
I was able to read this paper thanks to a generous s4me user. I don’t want to fall afoul of any forum rules, so I’ll just say I’d be happy to pay...
Has anyone been able to read the full paper? I’d like to but can’t at that link and it’s not up on SciHub yet as far as I can tell.
While I agree this project is bad and anything less than a distancing statement from Solve is unacceptable, there’s some additional context to the...
[MEDIA] [Soon, we will be formally announcing the launch of our new clinic: a center dedicated to recovery from complex chronic illnesses. In this...
The CDC with Walensky as its public face has consistently rolled back public health measures which kept COVID from spreading under the eugenic...
[MEDIA] This tweet from Hilda in July of 2022 cemented for me that she is not an ally of pwME in the sense that she doesn’t feel the moral weight...
I shared this same CR article in an online community of mine hoping to protect people. For what it’s worth, here’s an explanation I received about...
It may make her very easy to dismiss for people that are reflexively opposed to the structural and analytical frameworks she uses, but I think a...
He explains his highly idiosyncratic writing style at DwME as a necessary part of communicating with professionals. Yet these Twitter threads,...
update for what it’s worth. usual caveats about anecdotes apply obv. to recap, i am severe (almost entirely bedbound, entirely homebound) and...
I just went off it after 4 months on. The benefit I felt initially didn’t get larger with time, and whatever benefit there was was small enough in...
My own low-dose abilify anecdote for what it’s worth: Given the relative safety of this fad treatment and the fact severe patients reported...
Don’t think I follow you, sorry. Might just be my brain fog though :dead:. If you’re wondering which is the account I referred to, it’s...
Got a response to my complaint from the ME Association:
Separate names with a comma.
