I think these statements are relevant to the current thread on developing PROMs on the basis it seems the ethics statements claim here if patients...
100% agree on trials. In fact this should be over e.g. 2yrs follow up (and someone should be able to come up with a way it is a 'pattern'...
I’m sorry I haven’t read your comment in full yet (but looking forward to doing so when I have a moment where I’m better set up to make the most...
Well put
https://www.s4me.info/threads/the-process-of-cbt-for-cfs-which-changes-in-perpetuating-cognitions-and-behaviour-are-related-to-a-reduction-in-fatig...
sadly I think whether there were patients doing it or not and whether their content was dry, scientific and helpful or something else there would...
Thanks Sarah, I did do a quick read of his page and noted these things - and nice to have you confirm he is a top bloke and you know him well. I...
Thanks that is an interesting point, and you've flagged that I've missed taking it from that angle - and one which might well have merit given...
Hi Sarah, Nice to see you here and thanks for contributing and telling us about your background and experiences. Just so that I can...
Agreed. I think that airing valid concerns on the basis of what has tended to happen historically isn't something that should raise an eyebrow...
I've had a quick look at Dr Mike Horton and notice this one as a recent paper he was contributor on. Does this give a sense of what he/you as a...
I'm sorry but how dare they use such a poor patient cohort and claim it representative. Not only should they be seeking those who are severe and...
I agree, and it is really nice to see things like this that are starting to focus on getting the magnitude and terminology right to stop the...
I’d be eagle-eying the drop-outs on that one. To see whether what they achieved was using CBT as krypton factor to wheedle out the most severely...
If only people then observed to see whether what they blocked and deleted was actually critique….. I haven’t read this but as Knoop involved I...
To ask an open question - because some of these orgs aren’t always actually ‘just patients’ who don’t have conflicts of interest etc do we know...
I'd say the disability-level is someone's threshold (vs where they were according to the disability scales) vs what happens when they breach that...
Yes sorry I should have said that I was in agreement with what you were saing as gist, but 'being pedantic' on those points (just because I agree...
But what about those people who are very sharp or fit to begin with but have really bad PEM - it is not unusual at all for someone to be able to...
In discussion: is what comes before that line: You might note that what is termed 'psychological therapies' is actually an often now...
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