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  1. MEMarge
    Post

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    The really disheartening thing is this is probably someone's PhD work, so yet another keen young psychologist being taught crap methodology and...
    Post by: MEMarge, Jan 28, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. MEMarge
    Post

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    It's in Journal of Behavioral medicine, so it's quite likely that most of the articles have similar flaws, not sure it's worth the time to write!
    Post by: MEMarge, Jan 28, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. MEMarge
    Post

    Searching constituents of MPs sitting on Science and Technology Committee (UK)

    Not that I know of. @Graham did you hear anymore from this family in Oxted?
    Post by: MEMarge, Jan 27, 2019 in forum: General ME/CFS news
  4. MEMarge
    Post

    Medical Independent Ireland: 'It's all in the mind' (2019) George Winter

    Thanks Nasim, the hold the psych lobby have over the UK media is just unbelievable. Like numerous other aspects of ME.
    Post by: MEMarge, Jan 24, 2019 in forum: General ME/CFS news
  5. MEMarge
    Post

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    My reply from the Chairman is broadly similar, but other than thanking him I am not following it up right now as I'm concentrating on emailing etc...
    Post by: MEMarge, Jan 22, 2019 in forum: Open Letters and Replies
  6. MEMarge
    Post

    David Tuller: Trial By Error: My Six-Month Review

    You can't please everyone all the time! But please know that loads of us are thrilled with all you have done and continue to do. Please keep...
    Post by: MEMarge, Jan 22, 2019 in forum: General ME/CFS news
  7. MEMarge
    Post

    The ME Show

    Looking fwd to the new series Gary (note to self NOT barry!)
    Post by: MEMarge, Jan 21, 2019 in forum: General ME/CFS news
  8. MEMarge
    Post

    The importance of accurate diagnosis of ME/CFS in children and adolescents: A commentary (2018), by Geraghty and Adeniji

    Jane Colby posted on a parents Facebook Group that Tymes Trust had made open access possible for this, which is great. They do SO much for...
    Post by: MEMarge, Jan 21, 2019 in forum: ME/CFS research
  9. MEMarge
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Thanks @Gecko for all that you and other MEAction people are doing
    Post by: MEMarge, Jan 21, 2019 in forum: General ME/CFS news
  10. MEMarge
    Post

    NICE Annual Conference 2019: "Transforming care"

    Wonder if @dave30th fancies a visit to Manchester. It is also pretty close to ME Awareness Day.. Or maybe @Brian Hughes would have some...
    Post by: MEMarge, Jan 20, 2019 in forum: Other health news and research
  11. MEMarge
    Post

    NICE Annual Conference 2019: "Transforming care"

    Looks interesting.....
    Post by: MEMarge, Jan 20, 2019 in forum: Other health news and research
  12. MEMarge
    Post

    Article: Spain, "Lleida scientists discover a marker that allows diagnosing chronic fatigue [syndrome]"

    Looks a bit mixed. Am wondering what "hippo" therapy is? Possibly lost in translation or probably better left to the imagination.
    Post by: MEMarge, Jan 19, 2019 in forum: ME/CFS research news
  13. MEMarge
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Hopefully MEA and MEAction will be drafting their press releases as soon as the MP letters advice is out.
    Post by: MEMarge, Jan 17, 2019 in forum: General ME/CFS news
  14. MEMarge
    Post

    Venlafaxine (Velaxin, Effexor)

    I would be sure to come off it (if that is your decision) very very slowly.
    Post by: MEMarge, Jan 17, 2019 in forum: Other treatments
  15. MEMarge
    Post

    Open Seminar about ME in Oslo, Norway Nov. 27th (with amongst other David Tuller)

    @Kalliope would it be worth starting a new thread on Prof Lie's work. It seems pretty important to me?
    Post by: MEMarge, Jan 17, 2019 in forum: General ME/CFS news
  16. MEMarge
    Post

    What could be done about the Science Media Centre (SMC) in the UK

    Didn't @dave30th say he was planning to look at the SMC, following the excessive media coverage of Pariante's "not much to see here" trial.
    Post by: MEMarge, Jan 17, 2019 in forum: Advocacy Projects and Campaigns
  17. MEMarge
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    I took it to mean that they had links at the time of the PACE trial. This does not necessarily mean that these links then stopped.
    Post by: MEMarge, Jan 17, 2019 in forum: General ME/CFS news
  18. MEMarge
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Sounds like a great motion to me.
    Post by: MEMarge, Jan 17, 2019 in forum: General ME/CFS news
  19. MEMarge
    Post

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    There is also an "Employers' guide to ME" booklet; https://www.actionforme.org.uk/uploads/pdfs/employers-guide-to-me-booklet-2016.pdf I am just...
    Post by: MEMarge, Jan 16, 2019 in forum: Open Letters and Replies
  20. MEMarge
    Post

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    I have vague memories of Wesseley saying something incriminating, probably in one of his "Standing up for science/poor little me, all those...
    Post by: MEMarge, Jan 15, 2019 in forum: 2021 Cochrane Exercise Therapy Review
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