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Page 22 of 33
  1. MEMarge
    Post

    Simon Wessely Research & Related Quotes

    Could have been drawn with him in mind!
    Post by: MEMarge, Apr 12, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. MEMarge
    Post

    Simon Wessely Research & Related Quotes

    @Sly Saint Love the picture. Maybe it could be part of a placard at Millions Missing, with several different obnoxious statements in the speech...
    Post by: MEMarge, Apr 12, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. MEMarge
    Post

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    BUT, aren't exercise and antidepressants contra to the IOM report as AHRQ (or whatever the appropriate entity) have removed recommendations for...
    Post by: MEMarge, Apr 12, 2018 in forum: Open Letters and Replies
  4. MEMarge
    Post

    Graded exercise self-help for chronic fatigue syndrome in GETSET, Twisk, 2018

    Good to see you on here@jaimeS
    Post by: MEMarge, Apr 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. MEMarge
    Post

    Donation to Tuller/research as respond to our critics

    #Justice4ME gets my vote
    Post by: MEMarge, Apr 10, 2018 in forum: Advocacy Projects and Campaigns
  6. MEMarge
    Post

    #MillionsMissing 2018 UK

    Link to the Southampton event https://www.facebook.com/millionsmissingsouthampton/ They are also happy to provide suitable footwear, so you can...
    Post by: MEMarge, Apr 9, 2018 in forum: Advocacy Projects and Campaigns
  7. MEMarge
    Post

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    this is a gargantuan waste of research money... Good for further motivation to support DT.
    Post by: MEMarge, Apr 9, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. MEMarge
    Post

    Action for ME's administration and how that affects its views about treatment

    For those who are interested in Gregor Purdie as medical Adviser to AfME here is something he authored in 2010, for Scotland....
    Post by: MEMarge, Apr 9, 2018 in forum: General ME/CFS news
  9. MEMarge
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    have been enjoying retweeting and liking these, along with some of Mick's other howlers. It's worth joining twitter if only for retweeting ME...
    Post by: MEMarge, Apr 9, 2018 in forum: General ME/CFS news
  10. MEMarge
    Post

    What is Action for ME's current (March 2018) position on the PACE trial?

    A way around regulations is covert advertising, e.g. by getting 'personal experience' or 'recovery stories' in the media. .......or persuading...
    Post by: MEMarge, Apr 9, 2018 in forum: General ME/CFS news
  11. MEMarge
    Post

    Forward ME Group – Bodily Stress Syndrome

    Thanks again for all your meticulous work over the years, following this complicated process. Your perseverance and dedication is admirable. I...
    Post by: MEMarge, Apr 8, 2018 in forum: General ME/CFS news
  12. MEMarge
    Post

    What is Action for ME's current (March 2018) position on the PACE trial?

    Hello Clare Thank you again for your participation in this forum. People above have made good comments about PACE showing that PACE-style GET...
    Post by: MEMarge, Apr 3, 2018 in forum: General ME/CFS news
  13. MEMarge
    Post

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Wonder if DT could be a rep for invest in ME?
    Post by: MEMarge, Apr 1, 2018 in forum: Advocacy Projects and Campaigns
  14. MEMarge
    Post

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    William Weir was at the last one.
    Post by: MEMarge, Apr 1, 2018 in forum: Advocacy Projects and Campaigns
  15. MEMarge
    Post

    How to involve your MP in Carol Monaghan's PACE campaign + template email

    I think I may even try and see mine!
    Post by: MEMarge, Apr 1, 2018 in forum: Advocacy Action Alerts
  16. MEMarge
    Post

    Trinity College Dublin: New research network will bolster our understanding of Chronic Fatigue Syndrome

    Mary Dimmock et al's paper on economic cost of ME in USA, was a good starting point over there. As JE says above it can be a good starting point...
    Post by: MEMarge, Mar 31, 2018 in forum: General ME/CFS news
  17. MEMarge
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Go Dave @19%
    Post by: MEMarge, Mar 31, 2018 in forum: General ME/CFS news
  18. MEMarge
    Post

    Let's talk wheelchairs and mobility scooters

    Apologies, this was not a serious suggestion. However we did have a much older friend with mobility problems whose vision was also going and I...
    Post by: MEMarge, Mar 29, 2018 in forum: Home adaptations, mobility and personal care
  19. MEMarge
    Post

    Pediatric chronic fatigue syndrome: current perspectives (Crawley)

    It would certainly be worthwhile having a summary of errors for Crawley Paediatric "papers" including: diagnostic criteria (if any) measurements...
    Post by: MEMarge, Mar 29, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. MEMarge
    Post

    Let's talk wheelchairs and mobility scooters

    What about the pavements?
    Post by: MEMarge, Mar 29, 2018 in forum: Home adaptations, mobility and personal care
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