Such a shame that even the "repliers" to emails, presumably a low pay grade, have learnt the art of answering a question that wasn't asked.
I have a feeling that Mark Edwards was at the first NICE workshop in Jan
Have to admit it's my tongue in cheek preferred version, but in the light of medical history it could be considered more accurate
Just bought one, to take advantage of the early bird rate
The ELFT (anything to do with the mental Elf?) has been a prime mover in piloting the MUS (or whatever they are calling it this week?) approach. I...
Probably time i got a ticket.... as I'm fortunate to be well enough to go, and have postponed a holiday so that I am around.
I expect she is aware of the debate, but there would be no harm in any Uk person emailing her, in case one of her constituents doesn't.
Have just emailed Carol re the shortcomings/harms etc with the majority of the current CFS clinics and that PwME do NOT want more of the same. I...
Was that the release of the raw PACE data?
The Radio Scotland piece starts about 36 mins into the program and lasts till 53.13. It's a good piece with Carol Monaghan sounding strong on...
Thanks @Kalliope I think we just all have to keep bashing away in any way we can. Brick by brick the PACE wall will be demolished and the MOB...
I know Breakspear try and push expensive and extensive testing and many have spent thousands without gaining improvement. . When we took our...
Maybe stories laminated on to A4 could be part of the 12 May ME Action .I envisage them pegged to a "washing line". We shd find out on 21 Feb...
You are a star @Andy . Thanks
Hi @Liv aka Mrs Sowester . My friend uses Baclofen as part of her pain meds. She also started Naproxen which is NSAID, stronger than Brufen, but...
@Andy Would it be worth having a new thread about this along the lines of "Please email, tweet or like/comment on Facebook to Carol Monaghan MP....
Or maybe it will go towards Jo Cambridge, Fane Mensah etc at UCL, as their work on B cells has been done with collaboration From F & M?
Yes, it is them. Hopefully their message is clearly enough not an endorsement for LP, to be a major problem.
Saw earlier on a more international ME FB site that they are selling T-shirts that say "SMILE FOR ME". NOOOOoooooo! I will try and locate it later...
@Valentijn please could you do an email re Netherlands if you have the energy, wouldn't need to be long, just emphasises that PACE has led to...
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