From the last few examples it seems they are picking on the even more vulnerable, eg single Mums, non English speakers for their threats. Some...
This is why the current Guidelines need to go out with a Health Warning. There are other youngsters whose parents are too scared to speak out,...
TYMES Trust have worked with nisai to provide virtual classrooms see http://www.tymestrust.org/pdfs/succeedingwithme.pdf. I was at a TYMES...
Re the gender ratio, some of us are carers. I am, but also represent a daughter.
My 16 year-old daughter would have been distraught to be told there's no cure, when she was first diagnosed. Having a close friend of the family...
@Valentijn. There was "transfer of relevant info", including that highlighted above, and other useful items. i really don't want to go into too...
We also talked a great deal about harms from GET, including personal experience from some, currently there are teenagers being threatened with...
I think they are responding to patient's cognitions. To be fair, even at GOSH where we saw the Psychologist with our daughter we never felt that...
Just a few comments from our table, same one as Sally Burch's. We did not spend time on dodgy science/unproven treatments but did talk about...
Absolutely, this is what we were explaining, why we were so anti the PACE/Guideline CBT. We were near her, so this was more of a private chat.
So glad I wasn't! on the table with MS. Natalie Wright was on it, next to Lady Mar and said it was going well at tea-break. Didn't really notice...
Above link includes comments on Skype etc and video conferencing. I do not know whether that is to virtually attend a meeting or to provide input...
Questions were also asked about how PwME could be involved, given that most would be unable to survive a whole day meeting, let alone contribute...
@Valentijn and @Trish They are very much looking for people with relevant experience, including understanding of the science amongst the...
There was a lovely neurophysiotherapist at our table yesterday from a northern clinic. She is the "service lead"(?correct terminology, but she's...
You obviously need more time at the Bristol NHS acronym clinic Barry! Seriously though, the fact that recommendations for CBT in NICE are based...
Probably to get a wider audience interested @Trish
This is confusing and disappointing. NICE stated today that: They have made the decision to replace the Guideline in full, ie not try and update...
Good Luck to all those who go. Hoping your voices are listened to and heard. I am sure that Tymes Trust will raise this, but it would be good to...
If only it was just their English that was wrong!
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