I know a mum who has an appointment on Tuesday. They say will then discharge her daughter if she does not follow their GET/CBT program, The...
Unbelievable - AGAIN :banghead::banghead::banghead::banghead:
Thanks Andy. We were away celebrating my daughter's birthday o/n in Brighton, so could not attend the event. Another time I may well be able to...
My daughter and I felt and looked much healthier after 2 weeks in Crete in an all-inclusive hotel in July 2015. No food/drink shopping as all...
It is VERY INTERESTING that UCL/Gregorowski team is publishing NOW. AFAIK Anna G has not done much "research", other than that relaing to her...
Enough about us for now, but I will post more re current UCL approach another time.
One of GOSH/UCL recommendations is to limit all screen time to a max of 4 hrs/day. Other than avoiding it for an hour or so before bed and not...
Why did we go for 6 months: For a medical letter explaining her illness and thus delay in education, for when she recovered and applied to Uni....
The clinical psychologist chats were OK. Anna Hutchinson never gave the impression that A had anything other than a REAL illness. She was...
The sessions, monthly for 6 months comprised a one to one "goal setting" session of A with a physio, followed by a family chat session for a...
At her initial assessment we were asked if 2 other people could sit in. One was doing research (prob PhD) on cortisol levels, which seemed...
I had forgotten that the appointment began with questionnaires. I think we completed them at GOSH, some for A and some by us. Then A was taken...
Our initial appointment, to confirm that A had ME, was a discussion with Anna G and the three of us. I got to the room slightly after A and her...
We have direct experience of GOSH. My daughter went there, with us(parents) in spring 2011 The team there under Anna Gregorowski (nurse...
This extract from above shows how little they understand re moderate or severe ME. "Difficulties with memory and concentration are a core...
Hi does anyone have ideas for info about the nature of moderate ME that would be worth taking to a Jobcentre appt. I know this is a bit random....
This is just one example of a self-efficacy questionnaire: Schwarzer - https://cyfar.org/sites/default/files/PsychometricsFiles/General...
I think you deserve the advanced status for your amusing and insightful comments. Horizontal Superman (advanced)
So true, @Woolie, @strategist and @Trish. The first time that I heard re the BPS idea, I felt exactly the same, ie all illnesses are influenced...
Good results to take to UCL appointment in May for teen with ME, who is being threatened with discharge if she refuses to undertake their GET/CBT...
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