It has been automatic that all consultants reports to GPs were automatically copied to the patients (by post) for some yrs now (i'd guess a little...
Oh for .... sake! Why are they unable to hear, dizziness, sound sensitivity, clumsiness, poor coordination, muscle power, cognitive difficulty......
Yes @CRG but my problems are very, very much worse than brain fog. I cannot understand what is being said to me. I cannot understand the written...
I think the problem with issues with communicating & with cognitive dysfunction, (which can be very severe for me, such that even if i could...
Thanks @Simbindi thats reassuring, i see better what you mean now. I only saw that specialist once (it was Myhill, but she wrote an excellent...
Quick google reveals someone by that name left a psotitve review on Nina Muirhead's CPD module, so possibly a new meber of DwME?
Thanks for that info @meg22 very helpful. I also use that forum a lot but i somehow must have gotten the 'short window' mixed up with the short...
Well that is all very worrying frankly. Very worrying indeed. I have never been to a specialist clinic and i dont intend ever to go to one, well...
didnt the old guideline say we were supposed to have a care plan?
When you talk about writing to the decision maker @meg22 i'm not sure what you mean... presumably you dont mean for a mandatory reconsideration-...
no but it may have an impact on the assessors, which would massively impact the assessments. I dont know how that can be affected, but if we...
I dont think so @Peter Trewhitt because i know some people do get longer PIP awards. I havent had an ESA reassessment in 6 yrs... it has been...
because that would be to rub salt in the unface-able wound that is the fact that everything there is to know is not yet known. Its too distressing...
I think that article deserves it's own thread. It is very revealing. There's a few things i'd like to say about it but i dont want to pollute this...
Although i must say i have wondered about a blood flow issue because of the numbness/pins & needles sensation i get in my arms/legs, which is...
yeah, or xmrv. Looks like people are already going off half cocked about it <sigh>
from the nhs page, my bolding That is rather sly. Based on the fact that a dx of somatisation/bodily distress disorder etc is dependant on being...
No, and it risks tremendous harm to the vast majority of ME patients in the UK and elsewhere, who all have CFS on their records, many of us having...
her tweet & insistance in separating the too is really not helpful. as usual
Separate names with a comma.
