Fantastic @Snow Leopard thank you. I feel so privileged to have found S4 & get to learn from & pick the brains of scientists, doctors,...
I keep seeing cytokine storm associated with covid written in articles & people commenting on it to me etc. I know it's inaccurate because i have...
Precisely. I had no "fatigue" until about 5 yrs ago - 15yrs after onset. And tbh i'm pretty sure that said 'fatigue' that i do now experience, is...
eh? that doesnt make sense to me. I'm not a doctor, but Organ transplant recipients are immunosuppressed... they take drugs to suppress their...
I dont think so. I do get jaw pain sometimes due to the fact that i clench/grind my teeth when i am angry. This is very different from that. It...
Yes! thats exactly what i mean, anesthetized yeah, me too. It's interesting that so many of us seem to have this peculiar sensation at the...
@Mij I have a weird sensation in the forhead/front of my face, not with bad pain exactly - more like intense discomfort, with a weird sort of...
I could have written that myself. I cannot do anything, any. thing. while music playing/someother "background" sound like neighbours talking etc....
This
To be honest it's quite a relief to hear that, i questioned if i was going crackers at the time because everyone had raved about them so much....
yes, the signal for me to lie down if i'm sitting up or standing & trying to think/speak, is my cognitive function just disappears and will not...
Ugh. i totally agree :emoji_rolling_eyes::emoji_angry:
yes its interesting isnt it. I wonder if it's a severity thing? Not saying you're mildly affected Tigerlilea just saying about myself... When i...
I think it depends what was going on, inside it i mean. I think i would much rather do a 2 Day CPET on a bike, than (for example) a 2day sensory...
I missed that post @mango with the CDC link in, thanks for sharing it most helpful. Would love to see if any updated data as you asked.
Personally i'm afraid i found Fightback all but useless. It was surreal TBH. I paid for the VIP service but it was worse than no help at all. My...
Incidentally I have found over the years that spreading the journey out, stopping for 30 mins every 20 mins, (ie turning a 90min journey into a...
Absolutely. (My bolding.)
I get bad (full body affecting) PEM, from cognitive exertion or sensory stimulation alone - ie while lying completely flat. Travelling in a car,...
Fantastic @Trish I hope you manage to submit & it get published asap.
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