well they're calling it graded activity not exercise, what more do you want? Surely that's all thats needed, just change the word and carry on as...
I do wish researchers, biomedical as well as BPS, would stop declaring things 'have been shown' - as if its established scientific fact....
Indeed. Its amazing how obtuse they are, i mean truly staggering. Refusal to see that the NICE committee was actually heavily weighted towards...
Really? Once again proving themselves to have no earthly idea what CFS actually is. Its not Tired All The Time. I'm getting increasingly...
yes i often wonder when he says these things what 'help' he thinks is going to be given with management He and Sean O'Neill very grateful to them
i thought that, but i just tried to leave a star rating without an actual worded review, (on another item i bought) to test if it was possible......
Its so demoralising, i just thought we were getting somewhere & now we have to put up with yet more lies & manipulation. When will we be free of...
yes & thats how its * suppsoesd to work here too. But the issue is that their point of view is that if the dx you have doesnt include symptoms of...
thanks for those files @InitialConditions so helpful
Yes, i did. I never use the term brain fog except within discussions with other PwME - as short hand. I always use cog impairment, and did so in...
Bless you both thank you :heart:
Merged thread Please help me find something in the NICE guideline Sorry but i just looked at all the NICE threads & my brain just swimming. Can...
Years ago i read the guidance that DWP/ATOS/Capita assessors are given about ME/CFS, but i cant find it now & it's likely out of date anyway. So...
It sounds encouraging, i just hope & pray that the usual 'experts' ie Wessely et al, are not the ones called to sit at any round table (or calling...
also here a link that i can read full version of original article Barry posted in OP from MEA website Sajid Javid promises radical action for...
slightly different article but covers similar ground & reveals he has a relative with ME. This is the link provided by MEA facebook page & i can...
I feel sick. The cruelty.
sure... but which ones plenty of "recovered" people waiting to tell about LP etc. It could be great, could be catastrophic
:heart:
exactly @Lilas and in fine English too if i may say so. Opprobrium is a fabulous word! :)
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