oh amen to that!! If anyone ever sees me doing it for goodness sake, please clobber me! Sooo glad we have you, and others repeatedly pointing it...
Yes, i know people dont like malaise & i agree to a point because of the connotations with swooning victorian ladies. But the problem with...
thanks all i read it now. indeed
Many many stories on that page, i dont see the relevant one? I'm not good at sifting/finding key bit from a lot of info, i cant see it?
Total misunderstanding of what CFS is. It's not 'starved and exhausted' thats the whole point. If it were we culd simply improve our diet and...
No and neither does an severe ME sufferer, the comparison you're making with your own experience, is an accurate comparison to my own experience....
But if you had some degree of flu every day for 20yrs, and it had decimated your life and getting on that bike might give you a chance to get your...
This is what happens when you think one thing behind closed doors & say another thing publicly. They act & apologise as if its the advert that's...
How. Patronising. Stop telling people what i believe. And what my voice and body language are. You never met me! And you're Wrong.
i worry a lot
great response, many thanks to all
Im a bit confused. So this is a book by fiona fox, has anyone read it does she talk about ME/CFS,? Are the quotes about Crawley's harrassment...
really? i wonder what that is?
I can relate to all you say Mithriel, that is a good description. Thats again why i hate the 'fatigue' word. But i dont want to get my on my soap...
Yes i remember that House episode.... I only came to House in season 2 (there was no streaming/catch-up back then). And so it was only later when...
I've shared elsewhere on the forum how anxiety/anger and the resultant significant improvement in all symptoms (assumed to be from adrenaline...
my bolding yes ... there is a delay of 24-36 hrs before between the over exertion and PEM starting. But day 1 of PEM is never the worst, day 2...
So... am i interpretting this correctly.... it's something that is 'promising' but needs to be replicated with bigger numbers before getting...
I looked at that & i agree it could be helpful. But this.... (from the presentation) my bolding. this is at the heart of the problem with...
It makes me cringe when people all over the place make these claims for ME that are not substantiated, no matter how nice they might sound and how...
Separate names with a comma.
