I’m out of the loop here. Can you explain what DecodeME needs the money for? Are they not fully funded?
Blatant lie.
I may be wrong as well, but it seems like ED isn’t defined as «exhaustion after exercise». The dogma is that exercise is good for nearly every...
That’s most of medical and BPS science.
@rvallee we have the same thing in Norway. Pathetic.
I agree, but the LC researchers are trying to solve all adverse effects of Covid-19, which means that they have to solve ME/CFS. I should have...
I have skimmed some parts. It seems like they have done a decent job. It’s still open-label and subjective outcomes, but it doesn’t seem like they...
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Exclusion criteria for all participants were: (1) ME/CFS, (2) chronic pain disorder, (3) recent post-covid, (4) current suicide risk, (5) current...
She has around the clock care and can avoid PEM. She’s probably also lucky. She might have responded to some treatments, but that’s just...
Metal is probably lighter if that’s a concern. I don’t have any links, though.
They could have concluded that the evidence for CBT is very weak due to the lack of blinding and subjetive outcomes. We don’t know this yet....
If there is no effect in a pilot, there’s no reason to do a larger trial. The bias of smaller trials will usually lead to an artificially larger...
I’m leaning more towards Sean here. Mostly because LC is becoming such a massive problem that it will be impossible to ignore at some point. The...
This makes me believe that they’ve never encountered a severe or even moderate patient. If they have, there’s no excuse for this paper.
Fair point. But what about access to care? That’s notoriously difficult for ME/CFS-patients. My intended point was about close family’s ability...
And what about PEM from taking a bath? It doesn’t require more movement, but the stimuli seems to really mess with every single system.
Maybe the different responses to different types of exertion is something we should try to highlight in a future fact sheet? Idk if there are any...
I would be willing to bet that ME/CFS patients need more care from close family than most MS and Parkinson patients. Due to: less help and lower...
Don’t quote me on this, but I believe that there’s only one national fee. I don’t know if it’s distributed based on membership numbers in the...
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