@Jonathan Edwards Some googling told me that FFI results in an accumulation of misfolded cellular prion proteins (PrPc). I found a couple of...
Thank you! I would not be able to do that. I get PEM eventually. I believe the most common symptoms are, they usually come in this order:...
If, in theory, you could lie in bed and work, the limiting factor would be concentration and/or mental fatigue? I’m just trying to understand your...
Could you work 100 % from home with something cognitive?
My legs are the first to notice cognitive over-exertion, other than my head. They get really heavy and sluggish.
That was my initial thought. But then I thought that «Jonathan would probably say that we don’t know if it’s fully contained in the brain», so I...
I think it’s worth looking at what very severe patients say give the PEM. Idk where to find any info about it, though.
Our emotions only exist inside our body. As far as the brain goes, it’s kind of like an analog computer (the software aanalogy is wrong). I don’t...
Abstract The dominant model of disease today is biomedical, and it leaves no room within its framework for the social, psychological, and...
@mariovitali in case you missed this. Idk if it’s of any relevance.
I can’t comment on their methods or the validity of their statements, but could this be usefull for finding a biomarker for ME/CFS? Does anyone...
No, it was not supported if there was a high risk of bias. If the data is garbage, the support is garbage.
No, future trails are not warranted if the treatment was ineffective!
It isn’t really a model, it’s a conceptual framework at best: No empirical basis, just «this is how I believe things are connected» No framework...
In case it has not been said: the Norwegian MEA has over 7000 members. That’s about 0.13 % of the population. Idk why there are so many members...
I’d go as far as describing it as Orwellian:
Crohn’s disease and ulcerative colitis, thanks! Although I thought Crohn’s was far worse than IBS?
Joining this forum has been the most humbling week of my life for this exact reason. I just spoke to my dad. He said «you don’t have the all of...
Does anyone have access? How did they define a «flare»? In my experience IBS was pretty constantly terrible when I struggled with it. I can’t...
He’s also involved in other research on MUPS:...
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