I just want to be very clear: I am not claiming that indirectness is the main issue with PACE or the Cochrane review. I’m also not claiming that...
I don’t care what the result of my thinking is. I care about understanding the underlying mechanisms. And I currently don’t understand it. I...
FUNCAP might be a proxy here. Although one problem is that people might not know that they are in PEM if it’s a long crash (and they are not...
Here’s another angle that might explain why there’s focus on the diagnostic criteria: If you study a group that may or may not have PEM, then you...
FYI, this phrasing makes it seem like you’re saying that the wider inclusion criteria is acceptable because you like the results and want to apply...
Iirc, the studies that have looked self-reported ME/CFS status in combination with a symptoms survey, about 50 % of the self reported patients do...
I still don’t understand how you can use a CF study to say something in general about ME/CFS unless you’ve 1) proven that you have a...
Just to clarify, this is what I’ve been trying to say. Medfeb said it a lot better. @Jonathan Edwards I don’t know if it’s correct, but it’s my...
@Sly Saint 94 % on the watch during the night was normal according to him. I would guess that <80 % isn’t in the normal range. I would see a...
Thank you for dealing with all of my questions! Wouldn’t the likelihood depend on the selection method, the number of participants, and the...
That seems very backwards to me. I might be too foggy to understand this now, but I still don’t get it. If you have a group of people with CF,...
No, I did not catch the «something» part.
I slept with a device to exclude sleep apnea. My spO2 was 94 % on my Venu 2 Plus, but the external measurements were fine. The doc said it was...
@Hutan I agree that methodology is the core issues. But it should also be noted that when you don’t differentiate based on PEM, all of the...
I might have misheard things, but here’s a brief summary. He starts by asking the attendees what they know about CFS. Someone said «lethargy»...
@ME/CFS Skeptic for reference:...
Why not? Power and money are potent motivators.
I doesn’t surprise me.
It’s like how lawyers or auditors oversee eachother.
I learned about it at VGS (upper secondary/high school). Might have been my statistics teacher that was very into methodology.
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