A confession. Until I was diagnosed with ME, I didn't really believe it was a serious, debilitating and potentially life long condition. Most of...
Well done @jonathan_h. Honestly, sometimes silence is the best policy MEA. I appreciate mistakes can be made but it really isn't okay to...
Signed. Up to 2,250 now.
The snag as I see it is this - there is no authority that can or is willing to step in and put an immediate stop to therapies that are dangerous....
Not criticising anything, I think it's a great piece. I agree. While hope is good, false hope is a negative, toxic thing. Sooner or later the...
Also, a thought on labels. We know there is a long list of chronic health conditions that take a long time and various tests, sometimes several...
Couldn't agree more. Still don't understand why they can't just call it the IDK (I don't know) instead of MUS (making up sh**). At least that...
Thank you. I'm not really up to coherent letters at the minute as I've got a complicated situation going on at home that involves a lot of toing...
That is sheer lunacy. Either they have the communication skills to do their job or they don't. While probably a fair percentage of what a GP...
Possibly. I don't know compared to other hoovers & just assumed they're all noisy. I stick my ear plugs in when the hoovering is being done too.
Whatever you do don't get a Dyson upright. They are very good hoovers but the suction is so powerful as an ME patient you haven't a hope of using...
I occasionally get something similar but instead of noticing the tinnitus aspect I get a sudden slight colour shift that disappears. Mind you I...
I would like to make a research proposal. Assuming they were able I'd like to go through the questionnaires with the young people as they...
Yeah, each time you fill in one of those forms ESA or PIP it really rubs your nose in how little you can actually achieve. There is literally no...
My brother was prescribed them for pain for a while. I agree women are probably more likely to be prescribed them though. As they seem to be...
I have family members who have all suffer from the same condition that can be excruciatingly painful. Paracetamol and NSAIDs can only do so much...
Barbaric. I've had a couple of hysteroscopies and samples taken. Each done privately with a gynae who was really good. Each done as a day...
Yes, that's right. Dumb it down even further so you can misinterpret the results of inappropriate questionnaires some more. Let's make it...
Yep, I started to get visual disturbance with out pain about 5+ years ago. My usual migraines became much worse and lasted longer around the same...
Yeah, I wouldn't recommend that! I had the usual ear piercing, in those days the jeweller did it for you. Naturally, as a teen, one in each ear...
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