I was diagnosed as moderate to begin with. Crippling pain and cognitive issues along with sudden loss of power to a limb were among early...
I think any article that discusses ME and activity, let alone exercise, should first describe and give at least a basic outline of different...
It looks like a fluff piece and come across as having been written by people who don't really understand ME, quite frankly. It's a mishmash...
One of the issues as I see it is psychological interventions and those that deliver them have become (maybe they always were) an industry....
I sometimes feel like my body is my prison - I am rewarded for "good behaviour" by a lessening of symptoms, just enough to make me think trying...
I tend you wear yoga gear. I prefer the ones that look looser than leggings and I find them easier to pull on. They are comfortable enough that...
Re keeping hair and self clean while in bed. I recently came across these no rinse products - The no rinse shampoo cap - they can also be bought...
Garner still has the opportunity to put things right if he uses a bit of sense and objectivity. I can appreciate the thoughts of having ME is...
Oh the irony..... Of how someone who now believes themselves to be recovered (& I genuinely hope for his sake he has & it's not just a...
I have been pondering the quote "I feel that I have looked down the barrel of the ME/CFS gun and disarmed it". When someone becomes ill with...
I used to love swimming and went at least twice if not three times a week before getting sick. Even in the early stages, when my ME was at It's...
I think, we'll have to. :hug: Bottom line - it can be a slick as you like but as a severe ME patient who has had people deliberately try to use...
I'm afraid I disagree. I think the problem with questionnaires written by people who are experienced in writing questionnaires are that they...
I think those are probably fair comments when writing questionnaires for normal, healthy individuals @arewenearlythereyet. For example Often...
i think I'll out all the striped deckchairs together and separate from the solid colour ones...... Hmmmm perhaps it would be better to do them by...
I would rather see a questionnaire with more straightforward questions than one with fewer compound or complex questions. Initially it might look...
Completely agree. I would like to see questionnaires assess their own level of acceptability. Currently, if I attempt to fill a questionnaire...
This happens to me too. It's quite frustrating. If I'm asked a question about rating a symptom like pain on a "good" or not as bad as it could...
I don't know if it's the same thing but I had a lot of problems with skin rashes at one point. Typically it would start either on the soles of my...
Odd. The DOI link isn't working now. Edit -Link to journal at the very top does though
Separate names with a comma.
