exactly the same with me too, re Ivabradine. :)
@voner I took I typed up sheet of paper with lots of notes on it all about my pain and as you said, described the different types of it. But...
Hi everyone. I'm generally taking a break from the forum, but just wanted to come back to update people as I’ve had my pain appointment. Before...
Hi Natalie thank you, OK shall I contact you in January 2021, or would you prefer a sooner or later date? I have spoken to my boyfriend about...
Yes it can be the fault of the CCG or someone higher up, my GP has told me that before about not referring to other hospitals - I’ve been told...
I understand as I feel the same to. I've had stomach problems all my life but recently they've got worse in my upper stomach, also loose stools...
yes except in the same article - the ARPA which it would be modelled on seems to have morphed into defence research. That’s not helpful for ME...
Also maybe interviews or features In TV and newspapers! Both broad sheets and tabloids. They are powerful things.
I agree with some of the other replies here in that I don't think word-of-mouth and social media will be enough. I think a coordinated effort to...
woolie would it be ok if I sent you a PM? One of the parts of my ME is severe reactions to the flu jab - I’ve deteriorated rapidly after 2 flu...
As pots is a form of orthostatic intolerance. I told my symptoms to my cardiologist and said I feel much better lying down, and much worse sitting...
I agree. And also perhaps OCD, I have suffered with both. I would find it very difficult with this sort of labeling.
Yes I do wonder weather there's lots of subtypes and groups even within the banner of me and pots. I do wish pots was studied more!
I think this can occur in pots, I don't know if that's part of what you have, but I have heard from others people with pots say that if they're...
I was unable to do a tilt table test as cannot put weight on my legs. I had just a holter , BP testing and an echo done. I think a holter monitor...
@Blueskytoo I agree with the message above on having a look at that website. I have the same issue is you. Although I am not on anti-hypertensives...
London - imperial college london
did he expand on what autoimmune diseases and especially what chronic infections they had found? It would be useful to know as outside of the NIH...
Oh dear I can no longer have coffee tea or chocolate. It gives me panic attacks and with weird heart issues. However I do drink white hot...
@Jonathan Edwards you have explained that CSF is produced in the brain and then reabsorbed in the subdural brain skull space. But How does the CSF...
Separate names with a comma.
