Thank you Trish. It does help a lot. I think what you and others have written have given me more clarity than I’ve really had over the past 4...
Thank you so much Wonko. Don’t be sorry, it’s not garbled at all. what you and others have written is so helpful and is very different from...
This is exactly it. I can only speak from my experience and from the interviews I listened to on curable from other people using the app, as...
But I don’t know what I actually can and can’t do. :( I don’t really know what helps people with severe M.E. I try to rest but am not getting any...
Are you sure this is graded exercise? Oh my god I feel like crying now. But I’ve been through GET on the PRINCE trial and it wasn’t like this.
Ok, so I’ve read some of these posts and am very confused, please can people clarify? I’m working with a physio at the moment. She is very nice....
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I’ve tried this app, still have it as I bought a years subscription when on offer and now cannot give it back, will post more when I can on...
Yes. The shared sense of all of us together, who are all in this position with M.E. One day we will all get the answers we need and all of us will...
And @rainy it makes me very sad to read how you’ve been feeling. It is a very hard burden to bear. Please know you’re not alone. There are lots of...
Oh rainy.. all of what you’ve said, I felt that 100% too. It has been so, so painful since the CCI issue came out and truthfully over the past...
Hi Grigor:...
Thank you @Adrian, also I think the Guardian’s reply is just weird and they haven’t addressed any of your points.
I wish they would do the going away part. And yes it is like a cult, one that the NHS and many other healthcare systems have bought into completely.
It actually kept coming up as adverts on social media. It came up on insta a few times and I kept ignoring it because i only use Instagram to keep...
That’s surprising. It’s been a month since then.
Did you get a reply Trish? Personally I am happy if someone is studying this. I just want to know how they’re studying it and on what basis....
No, it’s not like that, it’s on his website. http://www.chiarinsc.com/word/New patient form2xx.doc It’s got some of these things but a lot more....
Yes I think you are right.
Somewhere in the booklet it says “your symptoms are real” But.. Elsewhere it says, “you have nothing to lose” And: “ Firstly, let’s begin by...
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