@Michiel Tack it is very definitely a good thing you wrote about it! It was a much needed post and I’m also glad you edited the ME-pedia page...
Thank you very much, I am very open to hugs. :) :)
To everyone reading, I want to say I’m very sorry for my paragraphs in my earlier posts, it’s been pointed out quite rightly by an admin that my...
Yes indeed. I did think along those lines, which is what I was trying to explain in my posts :) Yes please. “The clinical picture of CCI is...
@Michiel Tack i just edited my above post as I wasn’t sure I was explaining myself properly. Yes I think the confusion comes from the fact that...
Hi @Michiel Tack sorry I didn’t word it right, regarding the ME-pedia page, the bit I meant was when you wrote “For some patients, this might be...
@Michiel Tack thank you for your reply. I just want to address one point, that is: you wanted to write a resource that mentions that the symptoms...
I agree with this. I’m just wading in to this thread as someone who was really affected by Jen Brea’s recent articles on CCI (written in the...
Ah! What does GWAS stand for? That definitely sounds like a better way of providing data - visiting severely ill people in their homes. Edit:...
Thank you Trish. I do wonder then (and I’m sure this has been talked about already, sorry I just can’t read/understand all the replies),1) could...
Hi, please bear with me as I have severe M.E and struggle a lot cognitively (despite having a maths & physics PhD background.. makes me very sad),...
In terms of sleep, I haven’t read all the posts, so sorry if what I’m saying is not relevant. but in my view sleep is directly linked to the...
Hi Jonathan Edwards, @Jonathan Edwards I have severe M.E and live in south London, my mum has functional neurological disorder and is my carer and...
Yay thank you so much! Will definitely try to Watch the video conferences :)
Thank you. I hadn’t read that latest twitter post, I don’t go on twitter as I find it too overwhelming but occasionally go to check his posts....
Hello Robin Durham, I was wondering if you there is an update on how Michael Van Elzakker is doing / if there’s any updates to how the study is?...
Hi, Of course, that is why I asked first :) Ok :) I am happy to send him a private message is Jaime doesn’t respond here in a couple of days....
I too would like to know this. (I’m new to this forum but decided to create an account for this..) I am very happy that a potential biomarker has...
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