Thanks! I knew a couple of these, even summarized/translated them but not all of them. :) Wow, great timing. :) So I just actually published a...
Sorry about the clickbait title. :) So here is my situation and strategy: Right now I am the only person in the entire country advocating for...
I just finished watching a Facebook live video about long covid in children, as discussed by four Hungarian doctors, three paediatricians and one...
Really? Hm, mine was quite detailed, they looked at five different values, two of which showed 1) fresh EBV infection, 2) past CMV infection. I...
I don't think this affects many people in the West but might be interesting to some in other countries whose government may have ordered from the...
I was actually tested during the infection and later made a habit out of always bringing the test results with me when I see a new doctor, after...
Interesting you mention this thirst in PEM, @JemPD and @Midnattsol , I have that too but I've always thought it must be somehow connected to my...
This is a very good topic! a) I think by now it is possible to find all my symptoms in the different descriptions from different specialists....
The next International Classification of Diseases by WHO will list all three under the same code, as a neurological disease. So it looks to me...
And what happens to GET proponents if they still deliberately promote it? (Sorry, I'm really not familiar with how this works.)
I've been thinking a lot about this and this is exactly what I do in my ME/CFS Facebook group, where people with long covid are overrepresented...
Assessment and management of post‐COVID fatigue Abstract Post‐viral fatigue is the most common long‐term health issue facing survivors of...
Uh, sounds like gaslighting to me. Even though poor guy even mentioned this is against the recommendation of the long covid clinic.
Mine presents itself in quite an odd way, and I'm not sure how common this is (probably not so much). I think I'll just add more confusion to the...
Oh wow. She would love this too, just saw it today (found it because of the keywords I follow in Google news): How To Understand If Your Teen Is...
Copied post So I am still building the ME/CFS community in Hungary, and as part of that I reached out to an immunologist/rheumatologist, who seems...
The NHS seems to use CFS/ME. https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/
People often respond to the cognitive symptoms, and fatigue, unrefreshing sleep etc with saying they feel exactly the same. So I tell them that...
I actually tried to get used to alcohol again because I was thinking maybe I'm just not used to it anymore. And since I am still relatively young,...
Similar story here, I absolutely associate the development of my alcohol intolerance with my ME triggered by Epstein-Barr. Before that, I could...
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