Thanks for bringing this up, someone else suggested this to me as well. I think this might have played a harmful role, but in the end, these...
Looking at figures such as those from the NIH, ME/CFS is receiving far less funding than it should, based on disease burden. I would like to start...
Can anyone help get access to the article? Many thanks in advance
Duodecim publishes evidence-based medical guidelines that are taken over by other countries (for example here in Belgium). I have sent a mail...
Reminder: this event is today. I will try to follow the livestream.
An overview of the congress program is available here: https://fibromyalgia2020.com/congress-agenda/
My comment hasn't been published yet, so I submitted it again
Thanks Andy
Yes If I find the time and energy I hope to add concrete suggestions in a format that could be submitted to NICE, with mention of the specific...
In my view, the NICE guideline draft makes a lot of useful recommendations and is a step in the right direction. But there's always room for...
Not really, I think the draft is pretty clear on this and that a discussion on this was needed given that the previous guideline recommended GET...
I don't want to sound too optimistic. There are also quite al to of things in the document that I disagree with. Hope to be able to write another...
I've tried to make a summary of the NICE guideline because not all ME/CFS patients might be able to read it....
Not that I can remember, no
That suggests the SSAS isn't measuring what the name suggests it should be measuring. Does anyone have a link to the questionnaire?
Summary with quotes:
The report is problematic in many ways, but I think it's a step forward.
If you only look at patients with a short disease duration for example and find a much larger response than those with longer disease duration,...
It says that they used GRADEpro GT GDT for their summary of findings table. It seems that this is a common software programs that is used to...
Have submitted my comment today: [ATTACH]
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