I thought that in the cases of a well-adapted chronic infection the illness is significantly less severe than ME/CFS. And in cases where it gets...
For me, a characteristic feature of ME/CFS is that it can keep patients tremendously ill for decades without showing abnormalities in standard...
Don't know. Would be useful if others could give some examples of illnesses caused by chronic viral infections. I keep thinking of STI's and...
Sorry to hear that. I had the impression that those who get progressively worse form a subgroup and not the majority but it is difficult to say...
Are there any good examples of chronic illnesses caused by chronic viral infections? I can only think of AIDS where patients eventually become...
As usual, I received support from S4ME members who provided feedback and fact-checked before I submitted the comment. Many thanks, really...
I also submitted a letter to the editor. The submitted version is available here:...
We have written a short blog post about the long-term follow-up findings of the GETSET trial and its implications. [MEDIA] After years of...
There was a big Q-fever outbreak in the Netherlands and a Giardiasis outbreak in Norway which were investigated. In both cases there was an...
There are some additional references in the 2018 S4ME thread: https://www.s4me.info/threads/who-said-80-of-me-is-post-infectious.7320/#post-130742
Not really a large or representative sample, but I think the paper by Chu includes some data and a discussion on this: Onset Patterns and Course...
It would be interesting to have feedback from other patient communities. If you know anyone in other patient communities feel free to ask them...
It's in the back of our mind but that would be a long-term project that will take a lot of effort. We are first going to proceed with posting...
[MEDIA] New blog post where we explore the myth of the schizophrenogenic mother. Today schizophrenia is regarded as a brain disease but several...
The main issue I have with the tryptophan trap hypothesis is that thus far there doesn't seem to be a reason to think it has anything to do with...
It looks like they are going to recruit through ME/CFS patients organisations and ME/CFS clinicians so the results are probably going to be biased...
One a more positive note: it may be that diagnosis of POTS, MCAS, hEDS, ME/CFS, fibromyalgia, chronic lyme diagnoses all depends not so much on...
I'm concerned for conclusions such as 'hEDS patients and ME/CFS show high symptoms overlap so perhaps they are related or the same illness' or...
To be frank it's these type of conclusions that I'm concerned about. I think these difference will likely be affected by random statistical...
Yes, but if they are recruiting through ME/CFS patient organisations and clinicians then any data obtained in this way is likely to be misleading....
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