I've only been able to read this study now. Here are my thoughts. 1) 28% of the ME/CFS patients were diagnosed with POTS but the majority had a...
Cautionary note: we don't really know how reliable these lists are. We prefer to focus on the trending lists of Twitter itself where...
Thanks @lunarainbows! This is horrible. I think it's important that ME advocacy distances itself from figures like her.
Do you happen to have a link for this? Thanks in advance,
How to join MEawarenesshour on Twitter For those who don’t have a Twitter account but would like to join us for MEawarenesshour, it’s really easy...
No. They've first sent an email that they would get back to me, but they haven't despite another reminder email sent by me. I'll keep trying and...
Agree, good point. Nonetheless, it looks like a good video and it's on the BBC. Many thanks to Lorna Bryson for speaking out and sharing her story.
[MEDIA]
I've previously posted a graph on Twitter that showed a stark increase in the number of MAH tweets since last time, but I think I made a major...
But if I understand correctly, this will just be an advisory group, so not the people who will actually be writing the new review?
I thought the paper wasn't that bad. It mostly explains how the term 'functional' has different meanings They give the example of tic disorders,...
Horrible news, my condolences to the family. This makes the recent interview with Anthony David in the Times very grim reading material. He...
It's MEawarenesshour again tonight. Last week the hashtag was trending in the UK. Patients could see it on number 24 in the trending list on...
I agree that listening to what Dr Bolognese has to say and whether it makes sense, is ok. But by posting a picture with all the OMF people...
I have some concerns about this: [MEDIA]
M commentary on this study has now been published: “Letter to the Editor: A misleading CFS prevalence estimate in DanFunD”...
I have little to no merit in this. I think @FMMM1 might be better able to answer your question.
Twitter thread: 1) [MEDIA] 2) We often focus on the lack of funding from the NIH in the US but there are probably more ME patients in Europe...
"Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
I thought it might be useful to group our discussions and comments on academic publishing. This includes the role of scientific journals, the...
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