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  1. mango
    Thread

    The Mind-Body Syndrome Study (2019) Maroti et al

    The Mind-Body Syndrome Study by Daniel Maroti and Robert Johansson at Karolinska Institutet in Sweden is currently recruiting. (This is not a...
    Thread by: mango, Aug 10, 2019, 54 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. mango
    Post

    News from Scandinavia

    "Kroniskt trötthetssyndrom" in Swedish, but only the BPS people refer to it as "KTS", and a few of them sometimes use "CFS" or "CFS/ME"....
    Post by: mango, Aug 3, 2019 in forum: Regional news
  3. mango
    Post

    EFT (Emotional Freedom Technique)...coming to a CFS clinic near you? & a possible advocacy opportunity?

    @JemPD Were you watching the latest episode of Jane the Virgin? :) So funny, she was frantically tapping out that complicated pattern, and when...
    Post by: mango, Jul 27, 2019 in forum: Other treatments
  4. mango
    Post

    News from Scandinavia

    For those of you who would like to help more readers discover Karin Alvtegen's brilliant book about life with ME :) (It's a mini social media...
    Post by: mango, Jul 25, 2019 in forum: Regional news
  5. mango
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    I agree. However, according to this twitter conversation Jen Brea thinks adding EDS, MCAS and POTS to MEpedia is a much better idea than them...
    Post by: mango, Jul 24, 2019 in forum: MEpedia
  6. mango
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    @Jonathan Edwards is right, she didn't exactly say all poorly understood diseases. In this twitter conversation about MEpedia, she writes:...
    Post by: mango, Jul 24, 2019 in forum: MEpedia
  7. mango
    Post

    The Canadian Chronic Pain Task force report

    Although I haven't read the whole report, I share your concerns. I was thinking about this just the other day. In one of the current Swedish...
    Post by: mango, Jul 20, 2019 in forum: Pain and Inflammation
  8. mango
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    Not that I'm aware of. If I had to guess, I'd say that since one of the inclusion critera is that you have to be a patient at Stora Sköndal ME/CFS...
    Post by: mango, Jul 20, 2019 in forum: ME/CFS research
  9. mango
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    Per Julin at Stora Sköndal/Karolinska Institutet is a MD, PhD, specialist in rehabilitation medicine (brain injury focus), with clinical research...
    Post by: mango, Jul 20, 2019 in forum: ME/CFS research
  10. mango
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    For those of you not already familiar with Shahram Lavasani. He's an immunologist at Lund University. He has been involved in ME since 2016, and...
    Post by: mango, Jul 20, 2019 in forum: ME/CFS research
  11. mango
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    Questionnaires, blood tests and fecal samples before and after treatment. ETA: To clarify, like Clementine wrote, you do the fecal sample part...
    Post by: mango, Jul 20, 2019 in forum: ME/CFS research
  12. mango
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    Thanks for correcting me :) Editing my original post!
    Post by: mango, Jul 19, 2019 in forum: ME/CFS research
  13. mango
    Thread

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    Stora Sköndal ME/CFS Center in Stockholm, in collaboration with ImmuneBiotech Medical Sweden (Shahram Lavasani, among others) will be starting a...
    Thread by: mango, Jul 19, 2019, 23 replies, in forum: ME/CFS research
  14. mango
    Post

    Biomedical articles on MEpedia - purposes and pitfalls

    I just finished reading a very interesting discussion about MEpedia on Twitter. It's a long one, so I'll only quote a few tweets. You can click on...
    Post by: mango, Jul 17, 2019 in forum: MEpedia
  15. mango
    Post

    Clinical, radiological and immunological findings in ME/CFS, other pain conditions or fatigue; Bertilson

    They have started recruiting participants now, letters have been sent to 280 of their ME patients, according to this Facebook post by Björn...
    Post by: mango, Jul 11, 2019 in forum: ME/CFS research
  16. mango
    Post

    Sci-hub blocked in Sweden

    I'm in Sweden (currently using my regular ISP, no VPN etc) and I'm getting a very clear error message saying that it's blocked due to a decision...
    Post by: mango, Jul 6, 2019 in forum: General Advocacy Discussions
  17. mango
    Post

    The ME Patient Foundation

    Thank you so much for taking the time to explain, very kind of you! :)
    Post by: mango, Jul 2, 2019 in forum: Advocacy Projects and Campaigns
  18. mango
    Post

    The ME Patient Foundation

    This surprised me. Is it true? Biomarkers or diagnostic biomarkers?
    Post by: mango, Jul 2, 2019 in forum: Advocacy Projects and Campaigns
  19. mango
    Post

    The Norwegian ME Association's report on severe ME

    Wonderful to hear that you are planning an English translation! Yes, you are totally right. I should have asked you before sharing the Google...
    Post by: mango, Jun 28, 2019 in forum: General ME/CFS news
  20. mango
    Post

    News from Scandinavia

    Great Twitter thread (in Swedish) about giving informed consent to participate in research and allowing your medical data to be shared, why...
    Post by: mango, Jun 27, 2019 in forum: Regional news
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