Yes, definitely a good idea :) You can find ME-foreningen's email address on the following page, below the heading "E-post: Generelle...
@Hutan, I only know what's in the report, so I'll add a few more quotes: (Edited a few spelling mistakes.)
As far as I know there's no English translation as of now. It doesn't say anything on the webpage nor in the report about whether they are...
Yes, correct.
Another Google translated one (again, sorry about the low quality). Figure 3: Functional level of people very severely ill with ME ("How often...
No, what is translated here as "extremely severely ill" (ekstremt alvorlig syke) is not the same as "very severely ill" (svært alvorlig syke). The...
Figure 5: Functionality of the extremely severely ill (the 9 most sick patients in the study). [ATTACH] Sorry for the low-quality job on these...
Editing the images in the report is probably not allowed, but they are so striking that I couldn’t help giving it a try and quickly translate at...
@Jonathan Edwards If you haven't already seen it, the Norwegian ME Association has published a report on severe ME which is very much relevant to...
From the introduction, Google translated: "This report illustrates the situation of the sickest 25% of people with ME in Norway with regard to...
This is brilliant, thank you so much! :) I've started a thread here with some quotes from the summary, translated into English.
The Norwegian ME Association has published a report about severe ME based on a survey among 586 ME-patients and 198 carers. The report has been...
Thanks a million, @Hutan! Your notes are very very much appreciated, super helpful :hug:
If you hang out in Swedish ME groups online you will from time to time see posts saying things like "When I got diagnosed with ME by a doctor in...
ECT is sometimes used in Sweden too, to treat people with ME diagnosis :wtf::cry: Even young people (last one I read about is 18-19 years old)....
Avoiding them, if at all possible, seems like a very sound policy to me. I'm so sorry they have put you in this difficult situation :( It's...
From the MED Study thread, info relevant to this study too:
https://staff.ki.se/people/gabber
Some examples of current ME/CFS research at Karolinska Institutet: The MED Study...
Thank you! I too googled Mehlsen earlier, but those links didn't show up in the search result for me. Instead, I got links to his paper with Per...
Separate names with a comma.
