One of the authors, Mehlsen, has been invited by the Swedish patient organisation RME to give a talk on "Meeting ME/CFS patients in a clinical...
This blog post is about why it might be difficult but sometimes also very important to criticise "the good guys". It's well worth a read. It's...
Have you been following the discussions on Twitter? I don't know exactly what sparked this post of hers, but seeing how some people are talking...
http://occupyme.net/2019/06/05/ill-make-it-simple/ [MEDIA]
No, I'm too ill, unable to watch :( Haven't seen any comments yet about what was said either.
Video recording available here now: https://www.riksdagen.se/sv/webb-tv/video/interpellationsdebatt/bemotande-av-patienter-med-diagnosen-me_H610263
Here's one of Bragée's slides from Ur Samtiden, about recovery in ME. The title is "But certainly one can be cured", and the last bullet point...
Did you, by any chance, have a look at the questionnaires they are using? Unfortunately the questionnaires they have chosen don't capture PEM in a...
On Monday 3 June there will be an interpellation/debate about ME in the Swedish parliament. Will probably be live streamed, recorded and...
One of the main problems, from my point of view, with MEpedia and other wikis in general is that very early drafts are published immediately as...
This is from an earlier thread:
No, not including the ones with burnout. He was talking about ME patients only.
Yes, a private clinic. Opened in February 2017. Both Bo Christer Bertilson and Björn Bragée are new to ME. ETA: They do have a contract with...
Here's a link to another tv programme where Bertilson talks about ME and his hypotheses. It's in Swedish, was recorded 12 April 2019 during a...
Here's an earlier thread about one of Bertilson's other studies: https://www.s4me.info/threads/the-med-study-bo-christer-bertilson-sweden.8443/
Here's a transcription of what Bertilson said about their preliminary finding on Malou efter 10 (morning show on Swedish TV), 13 May 2019....
There’s been some discussion in other threads about some very bold claims made by Bo Christer Bertilson and Björn Bragée at Bragée ME-center in...
I, too, would love to know more about this (but I'm unable to watch videos). For example, is there anything in the CCI and chiari scientific...
I don't think RME will be happy when they find out that this is being discussed publicly. They are very very big on sweeping things under the rug....
No no no, none of your excellent suggestions caused any problems at all! They were super helpful and really made things better, easier. Very much...
Separate names with a comma.
