Almost all of us are all severely ill :( Maybe not impossible, but would definitely not be easy.
TL;DR The Swedish patient org RME is no longer biomed only, they support bps too :cry: For many years RME, the Swedish ME patient organisation,...
Henrik Berggren from Broder Daniel talks about M.E. [MEDIA] ETA: This clip is part of a MillionsMissing event (the details haven't been...
Are you aware that there are several different tabs on Twitter for the hashtag searches? The link you gave now to the hashtag listing goes to Top...
I'd say there is only one "real" ME patient org in Sweden. It has approx 1800 members. (One other org is basically a one man show, I believe? And...
Sweden has 69 donors at the moment, which I think is great, especially in comparison with last year. What seems to have helped a little bit was...
I too would love to learn more about that, if it's ok.
Reply from SBU (Swedish Agency for Health Technology Assessment and Assessment of Social Services)...
Written Q & A after a seminar, by Bragée ME-center in Stockholm, Sweden (not a recommendation)...
I don't know their reasons, just passing the message along. Sorry.
MillionsMissing Sweden would like to livestream their events online on May 12. However, in order to get access to sending livestreams on YouTube...
Advocates have been looking into it, contacted the National Board of Health and Welfare and the Social Insurance Agency's statistics department...
Please do click through to open/view the original article, even if you don't understand Swedish. This is a brand new platform for Reimer, and...
I'd just like to add that disinterest isn't actually worst case scenario, though. Similar things that happen in UK and other countries happen here...
@dave30th Yes, please do come to Sweden! I truly believe you could make a difference and be of much needed help here. When planning your trip,...
The question about governing bodies re: misconduct in research is a bit of a hot topic in Sweden at the moment, as well as the need for better...
Excellent feature on ME on Swedish TV this morning, on the show Malou efter Tio. Interviews with Karin Alvtegen -- pwME and arguably one of...
https://www.storkapp.me/ is brilliant too :)
In their recently published article Acceptance & Commitment Therapy for ME/CFS (Chronic Fatigue Syndrome) – a feasibility study (thread here) the...
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