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  1. mango
    Post

    News from Scandinavia

    Thanks. Yes... I had to keep fighting in courts for more than 9 years, so I know from experience how horrendous it can be :( It almost killed me....
    Post by: mango, Oct 25, 2018 in forum: Regional news
  2. mango
    Post

    News from Scandinavia

    There have been so many similar judgements over the years, also in the higher courts, but sadly they don't seem to make a difference :( It...
    Post by: mango, Oct 25, 2018 in forum: Regional news
  3. mango
    Post

    The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and CFS (2018) Jason et al.

    Post by: mango, Oct 24, 2018 in forum: ME/CFS research
  4. mango
    Post

    The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and CFS (2018) Jason et al.

    The DPEMQ questionnaire itself is available through the "supplemental material" link on the page linked in Cheshire's post. It's free to download,...
    Post by: mango, Oct 24, 2018 in forum: ME/CFS research
  5. mango
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    Part 3, about the news articles in Dagens Medicin and Läkartidningen: Pacegranskaren: Mycket känslor och lite vetenskap – igen...
    Post by: mango, Oct 23, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. mango
    Post

    Petition: [Finland] ME/CFS IS NOT A FUNCTIONAL DISORDER – WE CALL FOR APPROPRIATE TREATMENT [all can sign]

    Anyone (international) is welcome to sign the petition, right? Maybe make that clearer in the thread title?
    Post by: mango, Oct 23, 2018 in forum: Petitions
  7. mango
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    In Läkartidningen today (Sweden) http://lakartidningen.se/Aktuellt/Nyheter/2018/10/Cochrane-drar-tillbaka-MECFS-oversikt/ Google translate,...
    Post by: mango, Oct 22, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. mango
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    Short news article today in Dagens Medicin, Sweden https://www.dagensmedicin.se/artiklar/2018/10/22/cochrane-drar-tillbaka-me-oversikt/ Google...
    Post by: mango, Oct 22, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. mango
    Post

    Swedish Government: More knowledge is needed to better support people with CFS

    The project manager at SBU is Agneta Pettersson. Her interests seem to be depression and anxiety... at least according to this and this.
    Post by: mango, Oct 22, 2018 in forum: General ME/CFS news
  10. mango
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    Part 2: Pacegranskaren: Låt oss fokusera på den vetenskapliga kritiken...
    Post by: mango, Oct 19, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. mango
    Post

    Sweden - RME news

    Occupational therapist Ewa Wadhagen Wedlund, who just finished her talk, is really brilliant. I truly hope someone will add English subtitles to...
    Post by: mango, Oct 18, 2018 in forum: News from organisations
  12. mango
    Post

    Sweden - RME news

    New link for the second part of the livestream [MEDIA]
    Post by: mango, Oct 18, 2018 in forum: News from organisations
  13. mango
    Post

    Sweden - RME news

    The video quality isn't great today, unfortunately. RME commented in the chat that an edited video (recorded with a different camera, from a...
    Post by: mango, Oct 18, 2018 in forum: News from organisations
  14. mango
    Post

    Sweden - RME news

    The livestream is about to start any minute now [MEDIA]
    Post by: mango, Oct 18, 2018 in forum: News from organisations
  15. mango
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    Great comment by Jörgen Jelstad on Facebook (in Norwegian) [MEDIA]
    Post by: mango, Oct 18, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. mango
    Post

    Sweden - RME news

    The politician who gave the opening talk has blogged about it here:...
    Post by: mango, Oct 17, 2018 in forum: News from organisations
  17. mango
    Post

    Sweden - RME news

    Yes, the recording will be on YouTube later.
    Post by: mango, Oct 17, 2018 in forum: News from organisations
  18. mango
    Post

    Sweden - RME news

    Post by: mango, Oct 17, 2018 in forum: News from organisations
  19. mango
    Post

    Sweden - RME news

    I'm sorry, I'm unable to listen myself (too ill). I'll try to listen back to the recording later, when I can pause often etc. I'll let you know if...
    Post by: mango, Oct 17, 2018 in forum: News from organisations
  20. mango
    Post

    Sweden - RME news

    "Highlighting what criteria are being used. Canadian criteria ICC and SEID demand PEM (Post-Exertional Malaise) which the Oxford criteria don't do...
    Post by: mango, Oct 17, 2018 in forum: News from organisations
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