I can't remember, sorry. Didn't happen suddenly, though.
My hair is much much thinner now, compared to before ME. My ponytail is about 1/3 or less of the thickness it used to be :(
[MEDIA] Yet another phenomenal comment by Sten Helmfrid, this time in reply to a blog post written by a BPS extremist. Definitely worth a read...
The more I delay it, the worse it gets and the longer it lasts. As much complete rest as soon as possible is what works best for me. But I really...
"Symptomen blommar ut/upp" would work in Swedish too :) Yes, "relapse" is maybe the best equvalent in English?...
Me too. What word would you use for "flare/flare up" in Norwegian? I sometimes use the word "skov" in Swedish, not for regular PEM but for long...
Yes, I have them too. The HFME call them "adrenaline surges", and their description fits really well with my experience:...
Thank you so much for your kind words. Yes, I'm in Sweden. I completely agree with you re: the most simple, factual literature. I ordered the info...
Yes, I'm aware. Still, I don't believe it's impossible. Not easy, but not impossible either. What about the experts' letter to the HHS...
I'm currently being denied dental treatment/surgery because I insisted that they consider ME, POTS/OI and the risks involved (I'm severely ill),...
I wouldn't be so sure. It's definitely not impossible. Many of us are still working hard here in Sweden to try and make sure they use CCC for...
Hmm,... Are you sure? As I remember it, he chose not to be on the panel out of respect for all the patients and advocates who protested against...
Author and pwME Karin Alvtegen was interviewed on the radio yesterday 23 July, P4 Extra (audio, 18 min, Swedish)....
I traveled a lot the first few years after I got ME, I’ve had Delhi Belly, Pharaoh's Revenge and the equivalent in Turkey, Thailand and several...
Patient advocate Anne Örtegren in Sweden is another great example. She did an excellent job over the years, introduced more than one scientist and...
I would be very tempted to add a word to the second sentence, to emphasize that such a psychiatric label would be incorrect. Maybe something like...
Well, what would you expect from "Team Tired"? :whistle::yawn::asleep: ETA: For those who might not remember, or haven't seen this before. A...
Checking our blind spots: current status of research evidence summaries in ME/CFS Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared...
A transcript is now available at https://www.omf.ngo/2018/07/05/ron-davis-nih-grant/ Direct link to the pdf here.
You can count me in!
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