Well spotted!
Transcript looks great, thanks @dave30th. It's great to have this as well as the video to share—some people prefer one form over another, even...
Yup. Risk assessment for a nighttime wildlife survey: It'll be dark, you might trip over something. There's a lake, you might fall in. If you...
One of my worries is that it's actually going to end up being used for trials, when at the outset it was presented as not for use in trials.
I'm not sure, you know. I think it's actively encouraged by the political class, and is partly driven by political ideology. Perhaps not the...
No, but I like it! :laugh:
I suspect with the rehabbers (those working at ground level, at least) it's just lack of information. They've gone through a training and a career...
I didn't even realise it's so local! But yes, very familiar from childhood onwards.
Unless the muscle's already overused and exhausted, in which case it'll just end up hurting. :banghead:
PROM-washing (noun) The pretence of recording treatment outcomes, where there is no treatment and therefore no outcomes.
Even so, I'm still not really clear how establishing a PEM threshold would be useful. This is because we never normally have the opportunity to...
But we can't do the experiment unless we can start from a known point. Most pwME have no way of knowing what number on the scale they're at right...
I guess being discharged by a service would mean the treatment is finished? That's common and happens for various reasons. An ME/CFS clinic not...
I think it is, and that it was phrased this way for political reasons as you say. It sounds a bit desperate, so I'm not taking it very seriously...
Thanks, I'd forgotten about that. I'm thinking of the more recent, much slippier language.
I can't even remember what MUPS means. Medically Ubiquitous Parrot Symptoms? (I can feel a new word game coming on.) But seriously, I can't...
I suppose you can't blame them, since the alternative ( :eek: ) is to look at the causes.
An important point. I'm not sure about using reversible (they usually speak of improvement), but they present it as a treatment. They take care...
Even if the organisations gave permission, it's still not really adequate. Prising open difficult emotional issues and just walking away should...
PS: many, many thanks to David and George too. This is an incredibly useful exposition of the background to the story.
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