The trouble is that it's not old. New iterations keep appearing, new papers are published every week, new harms occur as a result. We talk about...
I don't know whether some of those deploying CBT really are aware. Many of them will be fairly junior staff who were told that it works, not...
No, that isn't really what I'm trying to get at—I know consent can be withdrawn. It's more that, as a theoretical participant: • If there's a...
On @Hutan's point about psychological questionnaires, the problem is that they often appear to be sneaked into assessments. If there's a good...
That sounds interesting! I hope they'll work closely with the community if they get the grant, because sometimes there seem to be nearly as many...
I like the sound of a psychosomatic status, I might develop one myself. Not sure about thinking I'm an emeritus professor—people will ask me...
I've been close to three people going through gruelling treatment, and none of them reported a PEM-like response. If they really overdid it one...
Hear hear! It makes such a nice change.
That tells us all we need to know. 'At risk' of behavioural issues—alcohol or drug misuse, being drawn into crime, developing obtuse...
One of the issues is that the presentation in severe and very severe ME is different to run-of-the-mill OI. Normally it's described as starting to...
I don't think it's a terrestrial channel at all. In the casting call, it says 'for a major streamer'—so possibly Netflix, Amazon, Apple, etc. It...
I think Jenny Wilson may have had it right in the tweet that @Lou B Lou posted—BACME. It's not a patient charity, of course, but the tweet doesn't...
Not able to speak for others, but I can't. I may wake up feeling much worse than usual, yet two hours later feel as well as I ever do. Or I can...
In terms of symptoms, @MelbME, it may be useful to have some reference to time of day. I'm not sure quite what (can't think clearly at the...
I agree that would be absolutely ideal, but I don't think it's realistic until we have trained ME nurses. For what it's worth, I've been having...
I suspect it's probably just idiocy.
Welcome @Lena Kjempengren! I hope you enjoy it here. The TL;DR is that: 1) ...are very different things and it'd be useful for the ME...
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of bright...
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it hard to...
What about when the subject moves their hands back so as not to make contact? That would be my instinctive reaction! :laugh:
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