Inability to recall the word rifle. "Where's my long shooty thing?"
And the cognitive ones – 'inability to remember where you left the rifle'.
In addition to the ethical issues here, reports like this should always say very clearly that a proportion of pwLC (including children) will...
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
It'd be nice to have some!
Forgot to mention this. It's not the rolling—it's things like whether you can get your head at just the right angle to be comfortable, whether you...
In my experience, the big ones are equally mediocre and uninspired!* But they work reliably, and in some ways there's not a lot to choose between...
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours, preferably...
Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other contexts...
I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in someone's level...
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few paragraphs of...
My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care teams to...
First posts copied and others moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist...
Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of which impact...
I'm a bit torn on this one. PwME should have access to consultants, but those doctors need training and experience first. Is it better to put...
It'd be hilarious if still being ticklish was our get-out for being diagnosed with FND. :D
The government thingie, that got put on hold when the election was called. I'm so brain fogged I can't even think of a term to search for it! :rofl:
Good idea—maybe we could ask for it to go into the action plan, or whatever it was called? It's not difficult to do, especially if a simple...
More often, the pretence seems to be that we have a disease model of ME in humans that we can somehow replicate in non-humans. We don't. There's...
I don't know, but the point is that it should. PEM is what matters in ME, so that is what should be measured, assessed, or whatever. New patients...
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