ETA: Sorry, I started writing this some time ago in response to earlier posts, but it looks well out of sequence now! I agree very much with the...
Galway
At least there's some observable pathology. In ME, we've no idea what the pathology looks like; until we do, we can't even know whether or not...
I wonder if this might usefully be expanded to include peaks of onset? The 'most common in people between the ages of 40-60 years' is true from...
There are, but it's not an unusual situation. A patient or participant can be taken through a lengthy diagnostic process, an answer can be found,...
My ten bob's on "because we always do". I went through my working life wondering why people did what they did, the way that they did. It took me...
And therefore quite expensive to employ. Universities are trying to cut costs, I know three people who've been offered early retirement packages....
And we're putting up with it, instead of marching through the streets.
The analysis sounds like a specific panel: People can opt out of the remaining genetic material being stored for future research, but I suspect...
I'd be surprised, specially as it's such a small cohort and there's going to be data from a much bigger one (albeit only adults) available to...
Yep! But according to the optometrist, some people just do. I noticed it 20-odd years ago, but I'm not sure whether it changed or I just hadn't...
Me too! That's part of it, but it also feels exclusionary because most people won't know what it means—it even stumps me sometimes because it's...
Disinformation is only 'politically vital' to those with certain political affiliations. You could make an interesting film about that.
One more, and we'll have 3704 x Nelson. :D [SPOILER] ETA: Completely inaccurate. Never, ever trust my maths. :rofl:
Exactly. If that proportion of any profession were shown to have ME/CFS, (a) there'd be an enormous amount of interest, and (b) the profession...
Funny, though, that there's been no trial of the reliability, accuracy, or usefulness of questionnaires, yet they can be assumed to be a valid...
No, I say P-E-M, and most of the people I know do. That might be the reason I think it's the norm and 'pem' sounds really weird, though! :D
If WE&ME is on Twitter/X, I wonder if they'd be willing to draw the attention of Österreichische Gesellschaft Für ME/CFS to the petition? They...
There's also the issue of academics being expected to publish ever more papers, ever more frequently. Why? Surely they should be judged on the...
That's an interesting point, actually. The questionnaire seems to acknowledge that pwME might do tasks more slowly than a healthy person, but that...
Separate names with a comma.
