An aside, but the funny thing is that when we find something really works the evidence will be hard to capture in graphable form. Years ago I...
I'm still hoping they come to understand that questionnaires should never be filled in whilst the patient is in a clinic. If they're sitting...
It'd be hilarious if someone asked whether "hysterical projection, catastrophising, conspiracy theories, overt hostility and insults" counted as...
Yeah, much the same. My cycle stopped at age 45, and 20 years later I still have symptoms. My 88 year-old nan once informed me cheerfully that...
They don't usually test at all, really. It's a fair assumption that if you're a certain age, hormone levels will be changing. I'd have been...
I agree, but they can sometimes be useful in this context. I'm of an age where nearly all the women I know have now gone through menopause, and...
I thought about this earlier, but is it the best way to go? As I understand it (and to be fair I don't), one of the values in these tools is that...
When it was used to describe my illness, I think it really was in that sense. I first heard it in the mid-70s, when I'd seen the GP numerous...
To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and then it's...
It is genuinely difficult and I wouldn't suggest allowing anyone else to do it. I was thinking of it either in terms of something members could...
Yeah, I think it just sounds discriminatory and patronising. You tend to know from the context whether it's being used in a neutral, clinical way,...
I'm not suggesting doing this, I just thought it might be an interesting question to raise. Could one of these tools be targeted at either a long...
My worry too. But if it can be made workable using that as a source to start with, all well and good. Most problems can usually be ironed out,...
I haven't the faintest idea how any of this works, but can you also ask it to prioritise other fairly reliable sources? Like the 2021 NICE...
That wouldn't surprise me, I imagine it's more the volatile chemicals that activate the trigeminal system. I could also detect those in very small...
Both of mine must be maddeningly over-enthusiastic then. I spent years reporting a really strong smell of gas that I picked up every time I...
It is, but feeling ill seems to be common. People sometimes experience infection by the same virus differently, so if PEM includes some kind of...
This! :laugh: Mine taste and smell has always been so acute that it's a problem, but there've been periods in ME where it's got even worse. I...
Me neither, PEM makes me ill. Isolated mental fatigue or fatiguability is a different thing. Perhaps we all have a slightly different...
Your question wasn't aimed at me (sorry!), but ... illness. Sore throat and swollen neck glands, hypersensitive bladder, feeling 'wired',...
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