I know that the BBC contacted some patients who attended the debate for comment. Whether that results in an article or not depends on a number of...
Very interesting. I wonder if NICE will include this in evidence for harms? There needs to be a proper assessment of studies that suggest...
She's hitting all the right notes so far. Incredible! Sharpe will be having a heart attack.
That's also a problem, indeed. For it to work, there would need to be scientifically derived averages for each of the measures included, rather...
It's interesting. Better than I expected. Still no mention of objective measures in outcomes (which I suggested on our table). The intro is much...
This in a nutshell. Note that you can also technically be sued for this if you say the same on Twitter, but journalists are a more obvious target....
The other issue here is that people tend to work longer hours in some cultures than others. In the UK, 37.5-40 hours per week is considered...
'Nothing new'? Rather like every one of their responses to date, then.
Halving the numbers each time doesn't really make sense. A more sensible idea is to use the 10% increments of the MEA or Bell scales. Then your...
Mainly because the whole thread appears to implicate Wessely (so he can be added to the complaint) and because it's showing up the multiple flaws...
But also, it's very political language. It implies that we're being profligate, careless and over-excitable. We're like those damn socialists in...
The recent informal assessment of the trial by Mike Godwin might help?
Not all grants are for services (many funds will specifically give grants for 'core costs', which includes staff and day-to-day advocacy), and...
The numbers quoted in this thread for monies raised by ME charities are saddening. That's not an insult to charities or patients, but a...
It's sad if all the useful patient representatives resigned, leaving only the crappy ones. This is, unfortunately, why sometimes it's not a good...
The only benefit of this is when people wake up and realise this trial is an abomination that should be cleansed with fire. It'll then hopefully...
All great ideas. Thanks. Another thing Nathalie suggested was some way of capturing complaints/bad experiences with clinics (that anyone can...
Yes, I've seen that one. I keep referring to the part on most/least appropriate source of care (GP and psychiatrist, respectively). That's mainly...
I know about 1500 people have used the 'contact your MP' feature on the #MEAction website, so that's a lot of MPs who will now be seeking case...
I'm so glad. I'm much happier with it, too.
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