My MP still isn't on here, I'm sad to say. I will fire off another (likely unanswered) email!
There's a catch in that #MEAction is part of Forward-ME now and so works with all those charities. IiME have said they do not want to work with...
Reduced areas of blood flow and metabolism. Such as: 'CFS patients showed a significant hypometabolism in right mediofrontal cortex (P = 0.010)...
(5 year fellowship), leading to tenured positions Very competitive salary package plus unique 1 million pound Fellowship Fund for the right...
Possibly. I don't know the exact reasons but it may follow. One of the rules of being part of Forward-ME is that you have to agree to work...
Frankly, I'm not a 'fragile' person, but I think they crossed the line. Some of the other replies to me have disappeared when I blocked them, so...
I think the time issue is a problem multiple people have raised, and is totally fair. Really, such a document, if it's to have support from across...
Yes, I have problems too. It's just not clever enough. We shouldn't leave doctors feeling aggravated and attacked. It needs to be smarter than...
I should add: Invest in ME Research have been asked to collaborate with #MEAction UK multiple times, and either declined every time or didn't...
It was a good session. Not quite a debate, since everyone was in agreement, but definitely interesting and on-message. This is somewhat exciting...
I think it's only being considered for the diagnostic part of the guideline. However, I suspect NICE will go with something easy and accessible...
Exactly right. I think they've got it mixed up somewhat. Yes, I'm part of #MEAction UK, along with a few others on here. But I volunteer for a...
Yeah, it's not too bad, although it suggests most recover at the end. I think it should qualify that younger people have a much better chance of...
I should add that Science 4 ME contributed a section too, I think. Again, that was because someone volunteered/suggested it, I believe. In...
As the person who drafted the NICE guidelines part of the briefing (which ended up getting revised quite a bit due to length), I know IiMER...
I sit mostly in a recliner, so feet off the floor! Like Jenny, I struggle with my feet flat on the floor for any length of time, so HUA might be a...
Re: reduced outcomes on the CPET even though you weren't experiencing overt symptoms of PEM, this reminds me of the Ramsay wording. He didn't...
I asked #MEAN what Klimas is blocking but they didn't answer, so maybe she didn't say. I don't think it's the same receptor as in GWI. I think the...
The results are very weak indeed. And again, they assume causation rather than correlation. It's far more likely that minute differences in...
To be clear: she claims the glucocorticocoid problem is in GWI, not necessarily ME. She doesn't yet have a mouse model for our illness, which...
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