Already this feels more accurate than other questionnaires.
This is helpful. To upload, there's a button next to 'post reply' that says 'upload a file'. I'm curious to try this out and see how accurate it...
Their job was to look at and give an overview of the existing knowledge on the illness, create a clinical diagnostic tool, and come up with a new...
Stephen would be good to have on-side. Maybe @JenB has communicated with him before, since he endorsed Unrest? It would require a tremendous...
It's from this paper: http://www.dsq-sds.org/article/view/938/1113 It might simply be this list of symptoms: Items Limbs feel heavy when not...
Thanks. I'll give up. It's possible it evolved into something else, but I don't think it's the DePaul Questionnaire, which was created earlier...
Sadly, I can't find the actual questions in any of these links. It's supposed to be a 22-item questionnaire, if anyone has any more luck than me.
Does anyone have this questionnaire? I'm trying but failing to find it.
Ah, so he was invited to join and declined. That makes sense. I was wrong about that bit. As for his justification...? Hmmm. I'm not sure. Why...
Hello! They've confirmed receipt, and not noted any problems. We've been a bit flexible with format before and not had any issues. Re: meds for...
#MEAction UK has its response here:...
I did the same thing. Although the point stands for both cases. We don't want clinics claiming false improvement ratings.
It was a somatic symptoms questionnaire or somesuch from a journal on hysteria. There were others too, including the dreaded HADS.
Yes, I've heard that Jason wanted to be on the IOM panel, or wanted his opinion to be considered, but it wasn't, so now he's hostile to SEID. The...
I think this is right. The questionnaires used to assess fibro are all about depression, anxiety, somatoform illness, catastrophising, etc. I had...
Yes, that's probably wise. Nuts can work, but you'd be cutting out so much I don't think it's possible.
Maybe they don't care? Or maybe we need to look at where they get funded? It's possible there are some vested interests there.
Very opaque.
Not really. Myhill has a handy shopping list for people with restricted energy here:...
It looks pretty good, actually. Some things appear to have been taken onboard, and they're more anti-GET/CBT than they have been.
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