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  1. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    The UK has a great network of local groups, lots of Facebook groups along with national groups with significant reaches. And a lot follow ME/CFS...
    Post by: Dolphin, Feb 4, 2023 in forum: Recruitment into current ME/CFS research studies
  2. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    No:
    Post by: Dolphin, Feb 4, 2023 in forum: Recruitment into current ME/CFS research studies
  3. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Note it says: Not everyone will have returned their sample and as I understand it, not all submitted samples can be used.
    Post by: Dolphin, Feb 4, 2023 in forum: Recruitment into current ME/CFS research studies
  4. Dolphin
    Post

    Kara Jane Spencer, UK singer with severe ME

    Farewell To Kara Jane – Shirebrook’s Standout Musical Genius! February 2, 2023...
    Post by: Dolphin, Feb 3, 2023 in forum: General ME/CFS news
  5. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Free professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-41/ Tuesday, February 14 1PM...
    Post by: Dolphin, Feb 3, 2023 in forum: News from organisations
  6. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    For what it’s worth, every one new person who is reached may be “worth” more than one person as some may go on to reach out to other people. And...
    Post by: Dolphin, Feb 2, 2023 in forum: Recruitment into current ME/CFS research studies
  7. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Firstly, for the avoidance of any doubt, this wasn’t a criticism of the DecodeME: I was highlighting the numbers in case people never read it to...
    Post by: Dolphin, Feb 2, 2023 in forum: Recruitment into current ME/CFS research studies
  8. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I’m not part of the study but my impressions are: (I) Yes (II) The quicker they reach the target, the quicker results will be available. I’m sure...
    Post by: Dolphin, Feb 1, 2023 in forum: Recruitment into current ME/CFS research studies
  9. Dolphin
    Post

    Well-known, famous people with Covid-19 and Long Covid

    Copied post: Colin Farrell
    Post by: Dolphin, Feb 1, 2023 in forum: Long Covid news
  10. Dolphin
    Post

    Long Covid in the media and social media 2023

    Post by: Dolphin, Feb 1, 2023 in forum: Long Covid news
  11. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I’m a little disappointed in the numbers. Looks like all in the ME community need to continue, or start, to highlight this in whatever way they can.
    Post by: Dolphin, Jan 31, 2023 in forum: Recruitment into current ME/CFS research studies
  12. Dolphin
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Source: CDC / Twitter Date: January 25, 2023 URL: HCPs: While myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is complex, case...
    Post by: Dolphin, Jan 27, 2023 in forum: News from organisations
  13. Dolphin
    Post

    Long covid outcomes at one year after mild SARS-CoV-2 infection: nationwide cohort study 2023, Mizrahi et al

    Long Covid After One Year: The Good News & the Bad News https://solvecfs.org/long-covid-after-one-year-the-good-news-the-bad-news/ This blog post...
    Post by: Dolphin, Jan 22, 2023 in forum: Long Covid research
  14. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Looks good: https://www.mdpi.com/2227-9032/10/12/2438 What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic...
    Post by: Dolphin, Jan 21, 2023 in forum: General Advocacy Discussions
  15. Dolphin
    Post

    Multi-omics microsampling for the profiling of lifestyle-associated changes in health, 2023, Xiaotao Shen et al

    They have been recruiting for this study. Stanford University researchers are recruiting ME/CFS, Chronic Lyme, and Long COVID patients for a...
    Post by: Dolphin, Jan 21, 2023 in forum: Other health news and research
  16. Dolphin
    Post

    New blood diagnostic company started by Mike Snyder at Stanford

    They have been recruiting for this study. Stanford University researchers are recruiting ME/CFS, Chronic Lyme, and Long COVID patients for a...
    Post by: Dolphin, Jan 21, 2023 in forum: General ME/CFS news
  17. Dolphin
    Post

    Works of fiction where characters have ME/CFS

    ME Association · WIZARD NEWS! SALLY WINS BOOK BLOGGERS AWARD FOR THE FIRST OF HER 'TOBY' BOOKS A children’s wild wizard book featuring a...
    Post by: Dolphin, Jan 20, 2023 in forum: General ME/CFS discussion
  18. Dolphin
    Post

    Netflix "Afflicted" - ME included

    "It's got to be in your head": Using Mental Illness to Silence Chronic Conditions in Afflicted by B Fitzsimmons in "Streaming Mental Health and...
    Post by: Dolphin, Jan 19, 2023 in forum: General ME/CFS news
  19. Dolphin
    Post

    What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults 2022

    That’s one of the reasons why I preferred “systemic exertion intolerance disease” to “chronic fatigue syndrome” and I thought ME/SEID would have...
    Post by: Dolphin, Jan 18, 2023 in forum: ME/CFS research
  20. Dolphin
    Post

    USA: News from Solve ME

    From page 1:
    Post by: Dolphin, Jan 17, 2023 in forum: News from organisations
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