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Page 14 of 39
  1. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    To facilitate sharing on Twitter, though her appeal may be for other interviews as well?
    Post by: Dolphin, Jan 8, 2023 in forum: Recruitment into current ME/CFS research studies
  2. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Tuesday, January 17 Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-40/ 13:00...
    Post by: Dolphin, Jan 7, 2023 in forum: News from organisations
  3. Dolphin
    Post

    Government and Insurance companies - establishing the BPS model

    Thanks. It's useful to use words and terms correctly. What I meant by the following: is that the person wasn't convinced that a biopsychosocial...
    Post by: Dolphin, Jan 7, 2023 in forum: Work, Finances and Disability Insurance
  4. Dolphin
    Post

    On the clinical assessment of persistent fatigue and pain (includes people with ME/CFS), 2022, Bernhoff (Thesis)

    List of scientific papers This thesis is based on studies reported in the following papers, referred to in the text by their respective roman...
    Post by: Dolphin, Jan 6, 2023 in forum: ME/CFS research
  5. Dolphin
    Thread

    On the clinical assessment of persistent fatigue and pain (includes people with ME/CFS), 2022, Bernhoff (Thesis)

    https://openarchive.ki.se/xmlui/handle/10616/48455 Source: Karolinska Institute Date: January 4 and February 3, 2023 URL:...
    Thread by: Dolphin, Jan 6, 2023, 4 replies, in forum: ME/CFS research
  6. Dolphin
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    Aylward worked in the UNUM centre. UNUM is/was a disability insurer: they pay money if you can’t work rather than a health/healthcare insurer who...
    Post by: Dolphin, Jan 6, 2023 in forum: News from organisations
  7. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-39/ Topic: Reframing Resolutions...
    Post by: Dolphin, Jan 5, 2023 in forum: News from organisations
  8. Dolphin
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    FWIW: https://bacme.info/event/bacme-agm/ The BACME Board would like to invite all BACME members to join us for our Annual General Meeting being...
    Post by: Dolphin, Jan 4, 2023 in forum: News from organisations
  9. Dolphin
    Post

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    Merged Recording of webinar with Brooke Scoles on her study on use of stigmatizing language used about ME patients on an online forum. [MEDIA] &...
    Post by: Dolphin, Jan 4, 2023 in forum: ME/CFS research
  10. Dolphin
    Post

    The Rise and Fall of the Psychosomatic Approach to MUS, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, 2022, David Marks

    I have an idea how hard it is and am grateful for your work on this. It frustrated me that Margaret Williams never seemed to submit anything for...
    Post by: Dolphin, Jan 4, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Dolphin
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Got one today too
    Post by: Dolphin, Jan 4, 2023 in forum: Fundraising
  12. Dolphin
    Post

    Long Covid in the media and social media 2023

    UK GP publication: 2022 in review: Will long Covid help us understand the unexplainable?...
    Post by: Dolphin, Jan 3, 2023 in forum: Long Covid news
  13. Dolphin
    Thread

    Pediatric Post-Acute Sequelae of SARS-CoV-2 infection [with ME/CFS control group], 2022, Jason

    https://www.tandfonline.com/doi/abs/10.1080/21641846.2022.2162764 Research Article Pediatric Post-Acute Sequelae of SARS-CoV-2 infection Leonard...
    Thread by: Dolphin, Jan 3, 2023, 2 replies, in forum: Long Covid research
  14. Dolphin
    Post

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    I’m definitely not saying sexism and misogyny don’t exist. I’m saying the methodology is far from ideal in terms of rigorously ascertaining which...
    Post by: Dolphin, Jan 3, 2023 in forum: ME/CFS research
  15. Dolphin
    Post

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    I think that approach would be better approach to ascertain what experiences relate to gender and which relate more to general experiences both...
    Post by: Dolphin, Jan 3, 2023 in forum: ME/CFS research
  16. Dolphin
    Post

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    There is more to a paper than the abstract. Skimming down the paper last night, I noticed gender was brought up e.g. “Several women attributed...
    Post by: Dolphin, Jan 3, 2023 in forum: ME/CFS research
  17. Dolphin
    Post

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    Without male controls, it's questionable one can assume that these experiences are specific to women.
    Post by: Dolphin, Jan 3, 2023 in forum: ME/CFS research
  18. Dolphin
    Thread

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    Women's Health Reports Vol. 3, No. 1 Original Article Free: https://www.liebertpub.com/doi/10.1089/whr.2022.0052 “I Just Want to Feel Safe...
    Thread by: Dolphin, Jan 3, 2023, 16 replies, in forum: ME/CFS research
  19. Dolphin
    Thread

    CFS is on the MLA list of topics that must be taught to UK medical students from 2024/2025

    [MEDIA] [MEDIA] [MEDIA] [MEDIA]
    Thread by: Dolphin, Jan 2, 2023, 6 replies, in forum: General ME/CFS news
  20. Dolphin
    Post

    Article on people claiming PIP, figures, top 50 conditions

    Are some people still on DLA?
    Post by: Dolphin, Jan 2, 2023 in forum: General disability topics and advocacy
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