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  1. Dolphin
    Post

    United Kingdom: News from Forward-ME Group

    The Royal Colleges report in 1996 recommended the name be CFS and ME be dropped. CFS on its own was what then used almost exclusively from then to...
    Post by: Dolphin, Apr 20, 2022 in forum: News from organisations
  2. Dolphin
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I have seen a lot of ME/CFS studies struggle with recruitment over the years. As I said before, I think more people could put more effort into...
    Post by: Dolphin, Apr 17, 2022 in forum: News from organisations
  3. Dolphin
    Thread

    Health-related quality of life in Young People with Chronic fatigue syndrome/Myalgic encephalomyelitis, 2022, Similä (PhD thesis)

    https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2991015 Health-related quality of life in Young People with Chronic fatigue syndrome/ Myalgic...
    Thread by: Dolphin, Apr 16, 2022, 6 replies, in forum: ME/CFS research
  4. Dolphin
    Post

    CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

    Via the Massachusetts ME/CFS & FM Association monthly newsletter One of these starts in less than hour —- ECHO Webinar Series The Long Covid...
    Post by: Dolphin, Apr 14, 2022 in forum: Resources
  5. Dolphin
    Post

    CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

    Past recording details. Clickable links/files at link https://m.box.com/shared_item/https://app.box.com/s/a9mnj1ypho0j9li30jymcsl5kwsr054q...
    Post by: Dolphin, Apr 14, 2022 in forum: Resources
  6. Dolphin
    Post

    N-acetyl cysteine (NAC)

    Post copied from N-Acetylcysteine to Combat COVID-19: An Evidence Review, 2020, Zhongcheng Shi and Carlos Puyo This was presented at a previous...
    Post by: Dolphin, Apr 12, 2022 in forum: Drug and supplement treatments
  7. Dolphin
    Post

    N-Acetylcysteine to Combat COVID-19: An Evidence Review, 2020, Zhongcheng Shi and Carlos Puyo

    This was presented at a previous IACFS/ME conference: N-Acetylcysteine Alleviates Cortical Glutathione Deficit and Improves Symptoms in CFS: An...
    Post by: Dolphin, Apr 12, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  8. Dolphin
    Post

    “Dr. Ken Friedman and Dr. David Maughan – ME/CFS and Long Haul Covid Similarities and Ramifications” podcast

    David Maughan’s wife is ill and he has done some research e.g. https://www.solvecfs.org/wp-content/uploads/2016/11/Gleeson-Cover-Story-PDF.pdf
    Post by: Dolphin, Apr 10, 2022 in forum: Long Covid news
  9. Dolphin
    Thread

    “Dr. Ken Friedman and Dr. David Maughan – ME/CFS and Long Haul Covid Similarities and Ramifications” podcast

    I haven’t listened so far...
    Thread by: Dolphin, Apr 10, 2022, 84 replies, in forum: Long Covid news
  10. Dolphin
    Thread

    National Institute of Public Health Québec (Institut national de santé publique du Québec – INSPQ) report on MCS and responses

    https://www.eleanorsteinmd.ca/interviews Interview with the Environmental Health Association of Québec / L'Association pour la santé...
    Thread by: Dolphin, Apr 10, 2022, 16 replies, in forum: Hypersensitivity and Intolerance Reactions
  11. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Thanks. We sent various diagnostic criteria checklists in previous mail-outs. Here is one handout on the NASA Lean test procedure that could...
    Post by: Dolphin, Apr 10, 2022 in forum: General Advocacy Discussions
  12. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    By summary do you mean summary item or we write a few lines summarising an item? Guessing the former. Yes, having a good page on our website that...
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  13. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Yes, that document is currently scheduled to go out this year as mentioned above.
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  14. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I just realised this thread will also be very useful for material to add to our website which badly needs updating.
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  15. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Yes agree that is a big consideration. I think that the fact that the Bateman et al. guidelines were published in the Mayo Clinic Proceedings...
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  16. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Thanks. Have a link to them in draft covering letter.
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  17. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Thanks. Will consider. Planning to send out Bateman et al. 2021 this year. We are also doing an email so some links could work for that.
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  18. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Back in 2008/9, we also sent out a smaller mail-out with no big document but smaller patient fact sheets on, if I recall correctly, pain, sleep...
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  19. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    We have sent: - the overview of the Canadian ME/CFS guidelines (published in 2004 or 2005) - the International Primer on ME (published in 2012) -...
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
  20. Dolphin
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Thanks. We previously circulated earlier editions of this in our newsletter (a much smaller mail-out) and suggested people could give them to...
    Post by: Dolphin, Apr 8, 2022 in forum: General Advocacy Discussions
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